What's going on?!: So I had endo symptoms... - Endometriosis UK

Endometriosis UK

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What's going on?!


So I had endo symptoms for 7 years, since I was 13, and was told I had endometriosis last year by the gynaeo, and this fits literally all the symptoms I've ever had. So I've been going every 3 months or so to try out new pills to get rid of the pain and this visit, she poked my stomach a bit and said 'well I can't feel anything attached so I'm gonna assume there's no endometriosis and a laparoscopy would be pointless'. What does this mean???? Endo perfectly fits literally every symptom I have and ever have had, and if it's not this why is she putting me on a new set of progesterone only pills to try and 'relieve the symptoms'. Do I actually have it, can she just change her mind like that, and if I don't have it, what is it? Feeling very frustrated and back at square one again!!

4 Replies

Hi, my GP also couldn't feel anything attached, but still referred me on and I was found to have endo. Have you had a lap to confirm the diagnosis? That's the way it should be done.

Hidden in reply to Fabbird

I was told I had to try a few more birth control options before a lap as I'm 20 and they said they'd rather do it closer to me wanting kids, which, if I can get the pain under control, I'd be happy with. Just feels frustrating to be told it was one thing and then maybe not x

First I've heard that you can diagnose endo by prodding someone's stomach, you can only do it by laparoscopy. Get a second opinion at a bsge specialist centre, check online.

Don't worry, I think everyone I've ever met with endo has at some point felt like they were going bonkers with contradictory advice.

Hope everything improves for you soon xxxxxxx

Hidden in reply to ktsb

Thank you xx

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