Does anyone have any experiences at Whipps Cross endo centre?

[Mrss25]

Hi can I ask if anyone has been seen at Whipps Cross and how they found it x

[HMPD]

Omg yes!! Need the reassurance too as I'll be going there for my lap later this year x

[rosesinbloom]

That makes three of us, as this is where I will be receiving my treatment.

OP, have you been yet?

[Emalouisa]

I had mine there 3 years ago terrible experience they accidentally went into my bladder and I had to stay in hospital another week because of it also there after care was horrendous I had my second surgery on Monday at st Mary's in Paddington everything went to plan x

[Emalouisa in reply to Emalouisa]

It might of changed now but I asked my doctor if I could receive my care at St Mary's Paddington as I knew people that have been under there care and couldn't speak highly of them

[rajsam in reply to Emalouisa]

how would i get referred to St Mary's?

[Emalouisa in reply to rajsam]

Go to your gp and ask them mine done it for me x

[rosesinbloom in reply to Emalouisa]

It's good to have feedback, even if it isn't good!

Did they not tell you they were going into your bladder? Oh just saw it was an accident, my god, how awful!

I'm glad you have had better care elsewhere. I'm worried about going further afield, if I need an op and to stay in, family won't be able to get to me, and coming home will be trickier.

My head is ringing with ifs and ands!

[Emalouisa in reply to rosesinbloom]

I live in Essex my mum took the day off work and we got a cab home it was Day surgery x

[Hidden]

I will be receiving care there as well under Jim Odejimni

[rajsam in reply to Hidden]

I am under the care of queen charlotte hospital, they decided not to do any surgery as there is to much endo so they are trying to manage it...

[rosesinbloom in reply to rajsam]

Do they really do this, if you have too much?

[rajsam in reply to rosesinbloom]

they told me that surgery would be risky, so they have given me decapeptyl injections and now the mirena coil, my hair s falling, ive developed severe anxiety, im always shaking... personally i dont think the coil is agreeing with me.

[rosesinbloom in reply to rajsam]

No, I would get in touch ASAP if you are always shaking too, get onto them. I've had a few friends where it doesn't agree with them too.

[rajsam in reply to rosesinbloom]

We did, the doctor emailed us and said that think it not the coil causing the problems, probably the injections.

ive been signed off work for the past 6 weeks, this is the worst I have ever felt.

I have stopped the injections the beginning of july.

How did your friends react to the coil?

[rosesinbloom in reply to rajsam]

If you've been like this since July, go in, demand to be seen, it's not right you feel this way.

One friend had hairloss, another constant pain, another one was allergic to it I think.

[rajsam in reply to rosesinbloom]

i am seeing her next week, they had no earlier appointments

[sanchia46 in reply to rosesinbloom]

Yes same thing happened to me at Newham hospital when they did my lap. They said the endo was too friable and too close to the bowel they didn't want to risk damaging my bowel.

[rosesinbloom in reply to sanchia46]

I'm worried they may say the same to me, but I don't think I can manage with this pain or more for years. Is there nothing to be done if it's too large?

[sanchia46 in reply to rosesinbloom]

Well see what they. I then went to another endo centre and they did offer to do an op, but it would've have been a major op and still risky so I declined. It's a personal choice.

[rosesinbloom]

Really interesting to see there are quite a number of us all in the same areas.

[CLN1986]

Hi ladies. I'm under whipps cross and can say, so far, it's all been a good experience. I had my lap just over 2 weeks ago and apart from waiting a few hours to go down for surgery, they was lovely on the day ward and everything went fine. My incisions are really neat, once I fully heal you won't notice them at all. I've now been referred to an endo consultant (assume this will be at whipps too as they are an endo centre) so waiting for that appointment. Feel free to message me if you have any questions/worries xx

[rosesinbloom in reply to CLN1986]

My replies keep disappearing! I replied here and now it's gone...

Thank you for this, it's good to hear it went well and that the incisions were neat too, I know it's silly, but it's another thing I do worry about.

Also good to hear they took good care of you on the ward, that's always reassuring. It sounds like they were good.

Did you have any removed, or was it just for diagnosis?

Did you have to stay overnight?

[CLN1986 in reply to rosesinbloom]

It was just for diagnosis, I think my endo was too severe for them to remove any (stage 3/4) so that's why I'm now being referred to a specialist. I had to be at the DAY centre for about 12:30. I didn't actually go down for surgery till 3:30pm. I finally got back on the day bleats just after 6:30pm and was allowed to go home at 8:00pm. They give you tea/coffee, ginger biscuits and a sandwich. I just managed one biscuit, needed the tea to help that go down🙈 A tiny bit of sandwich then I was sick. But they really looked after me. On your letter it says you can't have someone stay with you, but my husband sat on the ward with me until I went down and then was with me once I got back from surgery. Let me know if I can be of any more help x

[rosesinbloom in reply to CLN1986]

Thanks for this, it's all helpful. I'm not sure what's going to happen with me, as they already know I have it through the cyst showing up on the scan, so I'm unsure what will happen. I hate waiting now, I just want to know really.