Endometriosis, adenomyosis and interstiti... - Endometriosis UK

Endometriosis UK

70,589 members β€’ 52,107 posts

Endometriosis, adenomyosis and interstitial cystitis 😩

KimmyDonk profile image
KimmyDonk
β€’6 Replies

Hi guys!

Is anyone else taking gabapentin! Ive just been prescribed it at quite a high dose an quite worried on the side effects!

Any advice?

Thank you :)

Written by
KimmyDonk profile image
KimmyDonk
To view profiles and participate in discussions please or .
Read more about...
6 Replies
β€’
Deb1511 profile image
Deb1511

Yeah I take gabapentin, what dose have you been given? My doc always said and pharmacy to increase them slowly eg 1 first day two second three third etc etc my highest dose was 9 daily so used to take two two two then three a bedtime, first time round I was lucky and didn't have any side effects second time round this time I was convinced my hair was thinning and was another post on here that said her hair was thinning so she was changed to gab sis drug. I was also told when coming of them it had to be done very slowly and reduced every second day, hope this info helps good luck and hope they work for you X

KimmyDonk profile image
KimmyDonk in reply to Deb1511

Three tabs three times a day! I started off on one three times but didn't work, so gp has increased it! Thanks hun for the advice:) hoping they work too x

Deb1511 profile image
Deb1511 in reply to KimmyDonk

That's a lot Hun I was told really slowly took me about 2 weeks to get to 9 a day, Shame take care and hope they work let me know how you get on xx

KimmyDonk profile image
KimmyDonk in reply to Deb1511

I thought the same! She said start with three tonight but havent taken them yet!m 😐 Thanks hun will do x

Deb1511 profile image
Deb1511 in reply to KimmyDonk

If you can have one tonight, two tomorrow then three and stay on three as my doc and pharmacist said really slow or effects would be bad and I have to say they did work for me good luck xx

Wishes_ profile image
Wishes_

Hiya I was on 3 tablets a day for 3 weeks and had a really bad experience with side effects and they didn't help the pain. I was literally bumping into walls and was so unsteady on my feet along with extreme fatigue. The doctor explained that these are common side effects but should have settled within a week or so or with changing the dosage. I was quickly taken off them and prescribed an alternative which I've been fine with. I've heard they are great for some people but I just couldn't function on them. Hopefully they work out for you! x

You may also like...

Endometriosis and Interstitial Cystitis

this? What symptoms do you have? How do you manage them? What treatments have you had?

Interstitial Cystitis (painful bladder syndrome), FODMAP diet and Endometriosis

this is like IBS of the bladder. I wondered if anyone else had heard of it or has this condition as...

Interstitial Cystitis - Rigid Cystoscopy

endometriosis (including bladder endo). has anyone had this op? Any advice for packing for...

Endo on US ligaments and interstitial cystitis

Was just wondering if anyone has been diagnosed with endo on their uterosacral ligaments who also...

Endometriosis and adenomyosis

the end to my suffering.....my question is has anyone else had a hysterectomy at my age and felt...