It's all getting too much...

[Tracey207]

I was diagnosed with endometriosis 5 years ago but suffered badly for 9 years prior to that. I was diagnosed as the endometriosis grew around one of my ovaries which resulted in a burst ovary and a long stay in A&E.

I had surgery to repair ovary and to destroy it with laser. This was 5 years ago. I could not believe the difference. I was a new woman. I have not taken a tramadol in years and I'm shocked on how much I consumed.

However recently my symptoms have returned. I clot and bleed heavily during ovulation (even though I am on the combined pill), the pain is agonising. I have lost all energy, just want to sleep all day every day. Then when I have my actual period it's the same all over again.

I am also on slimming world at the moment and trying so hard to lose weight. I have been the same weight since I was 17 and cannot shift it, is this linked to hormones?

I have also noticed that the endometriosis may be affecting my bowel movement. I have taken the decision to cut out all dairy, which seems to have helped but before visiting this page I have never heard of diet helping symptoms.

I realise this is a long post with a lot of information. I am struggling to cope day to day with the condition at the moment. I have a busy business career and cannot be taking time off, yet once again I am unable to go in. I am worried about being seen as unreliable and that this condition is affecting my professional reputation, I want to be seen as credible.

I have tried many different contraceptives over the years, I think I'm actually out of options.

Has anybody got any advice, 27 years old and I can't keep calling my mum in tears.

[Hidden]

It sounds like possibly your endo may have reocurred which can happen unfortunately after surgery. Sometimes quite quickly and sometimes over years. Have you been back to your GP? X

[Starry]

Given your history Perhaps worth getting your GP to refer you to.a bsge endo centre for a scan etc to see what is going on. You could also consider a mirena coil it is progesterone only and as not ingested more effective than combi pills though it like all hormone treatments does not work for all individuals and comes with side effects.

The other avenue to explore in the event of recurrence is surgery but that comes with risks and adhesions etc so would need weighing up once you have a better sense of what you are dealing with.

X

[Tracey207 in reply to Starry]

Hi Starry,

I've had the Mirena coil before and the scaring actually grew around it making it ineffective, nightmare!

I am seeing my GP today, I have been twice a month for the last 8 months so this visit I am putting my foot down and asking for a referral. They are really not wanting to perform surgery again as I'm young and don't have children yet. However I really believe it is the only way.

I have been to the breast clinic recently because of chronic pain and sore lumps, told it was just hormones. After reading other posts I believe that this along side my pelvic pain, constant bleeding and mood swings could all be linked to a reoccurrence of my endo.

Thanks you for getting back to me. This website calmed me down so much yesterday and made me realise I am not the only person going through this and people do understand.

[Starry]

Nightmare indeed! Glad you are taking things forward and pushing for referral. just wanted to propose at least one non surgery option I guess. I'm on zoladex but it is horrible.

I'd like to inject anyone who say " just hormones" to me with a zoladex implant for a month and then see if they still thought the disparaging word " just" was appropriate to what side effects they can inflict on your body!!!!!!