Endometriosis UK

Treat each other with TLCwe all need it sometimes

Hi I'm new this is my first post

I was a member of an endo support group 10yrs ago and was kicked out of the north ugroup when I went into hospital for lifesaving surgery. I Rang the group leader who lived in Camden to let her know why I'd missed meetings and hoping she and the group would visit me. Her response was to accuse me of enjoying the attention of being in hospital and wanting to be the centre of attention.

I understood that there may be militant factions amongst us who view reliance on modern science as colluding with the enemy and having to have extensive life saving surgeryas a personal failing for not following a strict vegan diet.

The truth is this horrid condition affects all types of women with varying degrees of severity. There are many charlatans out there who will tell you that a cup of special tea costing £100pm will solve everything but the truth is when it gets chronic as mine did and causes abdominal obstructions and severe blood loss only surgery can help and save your like it didfor me. It took 12 hours of intricate surgery and a six week stay to save my like, but I owe my life to the surgeons and staff who catred for me. As for the leader of the group she proved herself to be an unfeeling malignant narccistitc control freak without any genuine care for the women in the group.

I hope it is NO longer practice in support groups to turn away those in desperate need of support just because they are undergoing surgery. We are all women deserving of respect and compassion., irrespective of our treatment choices and do ourselves no good by cruelly excluding other women in need.

It has taken me over a decade to want to approach a group again. I was deeply hurt by my experience and would like to offer any support that I can to other women.

3 Replies

Hi there and welcome to the forum. It sounds like you've had a tough time. We're a friendly supportive bunch here.

1 like

Hi I'm so sorry for your past experience of a support group. This should never of happened. You will not be treated like that on here, I promise. We support each other and will always be here if you need us.

Glad you've decided to give us a chance.


I would have to agree with you on sharlatns. Unfortunately i have learnt about them the hard way and it led to my hysterectomy. I know you think that i am stupid. But i hope that i was actually...

Now i am trying to find a nice clinic and it is very scary too. But i think that there are still nice people at least i know i can trust my sister who also had to undergo ferility treatment.

This is very nice of you... lots of love and luck!!

1 like

You may also like...