I have known I have endometriosis for a year now. I manage the pain and work full time regardless of the fatigue. I'm doing ok. My CA125 has dropped from the 100s to 55, that is a relief. The breast and back pain can get me down but I accept this is me. The thing that is worrying me though is bleeding from my bottom. Every month I bleed a lot and sometimes have tiny black clots (so sorry for tmi). I told my consultant (the third one I have seen in a year) and she said that is to do with my condition. My periods were every 28 days but lately they have arrived every 21 to 25 days, the bleeding from the bottom is the first sign my period is arriving. Every time it happens I feel frightened and shake. I'm not sure I accept this part of my endo. I'm told I have adenomyosis too. I have not had surgery, only internal scans have shown the endometrioma, fibroids and adenomyosis.
Is there anybody out there with similar symptoms please?
I'm taking the day off work to catch up on my housework but my boobs are hurting so I'm having a little rest and thought I would pop by.....