Been referred to Gynae

[emary1]

After fighting for years (!!!) I have finally been referred to gyanecology for persistent pelvic pain over the last 4 years. I have terrible bladder pain, urinary frequency, urgency but no problem actually holding my urine. Cystoscope showed a healthy bladder. My pain is definitely worse during ovulation but also at random times throughout the month. Can endo pain be random ? I sometimes have periods that are fine and sometimes periods that are agony and feel as if I will pass out/vomit and they are really intense. I cant distinguish a pattern with my pain but it is pelvic and it is chronic (can go on off for days here and there) since 4 years.

I really want to have kids so I am worried about fertility but also wondered- if I have a laparoscopy is that the end of a natural vaginal birth or is it only if they cut into the uterus?

[KA410]

There is no reason why having a laparoscopy would reduce your chances of having a vaginal delivery. Even women who have had more major abdominal surgery or previous Caesarean section may well be suitable for a trial of vaginal delivery although they would be under the care of a consultant who would assess, on an individual basis, the best planned method of delivery.

[Alicepirate]

I had the same urine pain as you for years on and off , mine quite random too, bad at ovulation, at night but ok in day can hold it fine but at night after I go I can get a lot of pain , also about a week before period I get a few random pains when it's painful to go and need to go more frequently. I went to the dr about 15 years ago with the pains I was never referred anywhere just the urine infection dip tests which occasionally showed minor traces of blood , over the years the bladder pains have come and gone I had some accupuncture for it which did help GP said I had an over sensitive bladder????? I gave up going about it and have managed until about a year ago.

Now I have bowel pain on left side and bladder pains all a lot worse at night, I had a lap n April and they removed endo from uterosacral ligaments and rectum but said after biopsies my main problem seems to be adenomyosis so my "swollen sore uterus pushing on bladder and bowel". I too have similar some bad periods some ok none really bad enough to take me to GP as they been the same all my life maybe slightly heavier now but not as bad as a lot of people on this forum.

But despite all these symptoms which I think I have had issues all my adult life , I have had 2 children both at home labours just normal painful but fine just gas and air. Took a little while to get pregnant but all fine . My uterus is tilted too think that's why I get the bladder pains too???? Home made lemon barley is really soothing easy to make worth a try to calm it it works for me sometimes 😀

[emary1 in reply to Alicepirate]

Thankyou so much for taking time to reply to me.

It's really supportive and reassuring just to hear from others who have gone through something similar. It helps to not feel Im alone with this or jsut going mad and imagining it!! I will keep on with the doctors and see if I can get anywhere with further investigation. Im so worried the consultants wont take me seriously or think its endo, as i dont have the normally associated heavy bleeding

Will try the lemon barley. I find drinking a lot of fluids helps even though that initially makes me have to go to the toilet more. Other than that heat- hot water bottle is my best friend. And I nap when its really bad.

Its my dream to have homebirths and be a mum so Im hoping this wont affect my fertility- it does make me anxious though.

[Alicepirate in reply to emary1]

yep I definately find the lemon barley good or also first thing in morning boiling water with half a lemon squeezed in also I put a dash of cayenne pepper In it too cayenne good for inflammation .

Yep I 'm the same I don't have the really painful periods and heavy bleeding I didn't think but I do get clots and flooding sometimes but I alway have had and some really painful times and you just get used to what's normal for you I suppose. Plus we all have different pain thresholds too.

I too find the hot water bottle the top pain relief , and I live near the sea so even when I feel rubbish I go in for a swim and it really helps although think that meant to be bad for endo the cold water but I love it. Pain wise it does helps for a bit anyway 😂😂😂

I'm awaiting appointment with urologist in a couple of weeks what was the cystoscope like if you don't mind me asking 😳

If you look at stuff on here about endo on the uterosacral ligament that may be why we get the bladder pains ????

hope all goes well with the gyne when you get the appointment write a list of symptoms before you go and take your time when your in there. But even if they fob you off make sure you ask for another appointment in a few months so you don't have to go back to GP and get referred again but hopefully they'll have some ideas of what problem is as once you know the pain is easier when you know what it is if that makes sense 😳😳😳😳😳