Newbie in need of chat : Hi new to both... - Endometriosis UK

Endometriosis UK

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Newbie in need of chat

Amandacarey79 profile image
9 Replies

Hi new to both this site and endometriosis would love advise and would love to have people to ask questions and for someone to understand how I feel and what I'm going through as no one around me does ! Lol

Please chat 😄

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Amandacarey79 profile image
Amandacarey79
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9 Replies

Welcome, we will support you and answer any questions as best we can. When were you diagnosed? X

JadeG profile image
JadeG

Hello, message me if I can be of any help! I've been diagnosed 9 months x

Amandacarey79 profile image
Amandacarey79 in reply toJadeG

Where are you from jade ? I'm guessing it was done by lap ? How have your consultants been ?

JadeG profile image
JadeG in reply toAmandacarey79

Plymouth! Yourself?

Yeah diagnosed by lap.

I've seen different consultants each time, they have all been pretty good though.

Just seen you haven't had the best experience.

Do you know what's next for you?

Amandacarey79 profile image
Amandacarey79 in reply toJadeG

Hi

Swindon and no not been great they have been rubbish and I have no idea I was basically told that it will take time to feel better and my symptoms to go as I'm still in consent back pain and feeling pelvis pain I've now decided to look for a hospital I can get referred too with a endo clinic and speak to proper consultants lol

I want to know my treatment options as I know I'm limited with hormonal drugs don't think there is much else that can help from what I've read

I asked if I would of always had this and wasn't really given a straight answer ?

Amandacarey79 profile image
Amandacarey79 in reply toJadeG

What's next for you jade ?

Natashalsl profile image
Natashalsl

Message me if you'd like to ask anything :) X

Amandacarey79 profile image
Amandacarey79

I was diagnosed July 2nd this year has consultant app yesterday first sine July and had the worst time he knew nothing couldn't answer my questions just gave me useless print out ! So I got quite angry ive requested to only see endo specialist but won't be holding my breath !

in reply toAmandacarey79

I've seen two useless consultants until I finally got a specialist! Please message me if you need a chat. I highly recommend finding a real endo specialist!! You just can't discuss such things on here.

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