Endometriosis UK
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Worried about Zoladex

Hey guys!

I'm new here and have only recently been diagnosed with endometriosis after a battle to get a diagnosis for 3 years!

I recently had laparoscopy where they found and removed as much as they could using helica. My consultant has now told me about Zoladex but I'm feeling really worried about the side effects.

I feel like I should try whatever I can to prevent the endometrosis from developing. I have read some sad stories online where it has attacked the ovaries etc and prevented women from getting pregnant. On the other hand I am also terrified of the side effects of Zoladex.

Did anyone else face this problem? What did you guys do for the best?

Holly xx

1 Reply

Hi - where in the UK and how old are you?

You have presumably been treated in general gynaecology by an obstetrician. Your surgeon says he/she has 'removed' as much as they could by Helica beam. This is a form of 'ablation' that just treats the surface of endo lesions by 'coagulation.' It penetrates just 0.2 mm and so by its promoters is considered safe as it does not damage healthy tissue beneath. But we have to consider what happens when the endo lesion infiltrates deeper that this - it is left to continue growing once the initial effect of treatment has worn off. Also once the endo is blasted the burnt tissue makes it impossible to know if any active endo underneath was left behind. The usual scenario in general gynaecology is to have repeated laps with endo blasted each time because it is never thoroughly treated. This results in unnecessary risk of adhesion formation (scar tissue) that can stick pelvic structures together and cause new problems of their own along with progression of endo.

It has already been confirmed that your endo has been inadequately treated by the fact that they 'removed as much as they could'. They propose these injections for what we have to ask? If it is to shrink any remaining endo then this will not work because if it was too complex for them to remove then it will not 'shrink' away. Only the most minor endo is ever likely to do so. At the very best it may lay dormant for the duration of the treatment only to become reactivated once you stop. And you may suffer severe adverse symptoms for nothing.

The only definitive way to treat endo is to thoroughly remove all visible disease and since this surgeon has effectively admitted he/she was not skilled enough to do so I should find one who is.

If you are in England you can see a specialist at an endo centre to have more thorough treatment. If in Scotland, Wales or NI it will depend on where the endo is that was left behind. Do you know where it was from the report sent to your GP?

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