My name is Jenny. My husband and I I have had 'unexplained infertility' for four years. Two weeks ago we went to a specialist to start the consultancy for IVF treatment. We have gone private as because my hubby has a child (my lovely stepson) we still need to pay. But, after a discussion about symptoms it was evident to him that it could likely be endometriosis and wanted to complete a scan which happened yesterday. The specialist did an internal vaginal scan and he found that I have ovarian cysts of 5 cm in both ovaries, with endometriosis and what could be either a bicornuate uterus or growths of endometrial tissue. This is what he could see. I probably didnt ask the questions I should have as I was just taking it all in!
As someone who has a diagnosis of ME and fibromylagia, I have always been keen to be proactive about managing my symptoms and I want to do the same here. I am full time carer for my sister with learning disabilities and I work full time. More recently i have struggled to manage work and caring role and have had to take a step back from work.Any suggestions on managing symptoms until I can get a laparoscopy would be most welcome as I need to continue work.
Due to the debilitating pain that I have had, painful heavy bleeds, bleeding throughout the cycle, stabbing pains, pain urinating, twisting pain below the belly button, pain during bowel movements, I want to try and resolve this as much as possible before IVF (especially if natural conception could be more possible?) I think it may have spread to other areas. Will this be determined in the laparoscopy? I understand this would take two different laparoscopy approaches so may need a second surgeon there? So does that mean the first one will determine where it is and if I need more surgery or is it worth trying to ascertain this beforehand?
I am potentially having to wait 3 months on a waiting list on NHS for the laparoscopy so I really am open to any suggestions that will help manage symptoms in meantime. (we have money saved but that needs to be for IVF treatment so has to be on NHS).
My specialist is going to write to GP so I will see her and ensure she makes the recommendation as soon as possible and get it passed through, I really just want to understand how they will determine the extent of the endo and whether it will take more than one surgery if they do?
Thank you so much for reading and listening. I was so pleased and relieved to get a diagnosis after constant disappointments, early miscarriages etc. But this quickly became feelings of anger upset and frustration and confusion.I thought I just wanted answers. I now have those and yet it has opened a whole other can of worms of questions.
Any help/advice would be gratefully received.