Fybro and endo at 23 help? : So after... - Endometriosis UK

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Fybro and endo at 23 help?

Emmahuh profile image
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So after 6 years I have finally been diagnosed with a mixture of endo in the bowle and and fybromyalgie. I now feel left in the dark. My symptoms have already left me bed bound most weeks,on morphine and having to wear incontinence pants. Is there anyone our there who can tell me what to exspect? Or anyone who has both the conditions? I feel like I'm at the end of my rope without a ray of light in sight. Help?

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Emmahuh
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Charlie-36 profile image
Charlie-36

Hey Emmahue. I don't have fibromyalgia but do have endo. I just wanted to say that if you're not already you must be treated in a BSGE specialist centre for endo especially if it involves the bowel, your gp can refer you. Look up Lindle on here she is brilliant and will be able to advice you.

I hope this helps x

Emmahuh profile image
Emmahuh in reply toCharlie-36

We are looking into a medical solicitor because of the guy who did my surgery. Another dr told one of my friends not to let the dr in question do her surgery because he was "a butcher". We think the botched operation is what has brought on my fybromyalgie. It's awful to know the person I trusted to fix my condition may have made it worse.

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