Endometriosis of the lung

[NatalieS22]

Has anyone on here been diagnosed with endo of the lung?

Thank you

[JenH]

I have endo on my diaphragm if thats any help?

[NatalieS22 in reply to JenH]

What are your symptoms? How were you diagnosed? Sorry for the questions.

[JenH in reply to NatalieS22]

No problem about the questions. I am not sure how much help I can be as I had no idea it had spread that far. They found it on my last lap (5th in total) and the pains have always been the same endo tummy pains, painful sex etc. Although my back was worse before the lap and i do seem to get out of breath for doing nothing more than climbing stares, I am reasonable fit so I thought that was strange. Sorry I cant be more help I am waiting for my next surgery date so that they can operate on this, but the surgeon did say sometimes one of the symptoms for endo in this area is shoulder pain? But I haven't had this. I hope you get your answers!

[GrittyReads]

Hi Natalie,

I'm afraid I don't know anything about this, but I'm sure someone does.

I would try contacting 'Endometriosis UK' direct. They host this site, and there is a link to their website at the top of this page. From there you should find links to phone or email their advisors.

Also, there is a woman who posts on here called 'Lindle'. She seems to know everything there is to know about Endo, so I would search her messages on here and see if she already discusses it (she posts pieces on here about different aspects of endo from time to time), or try to get in touch with her from one of her posts.

Sorry I can't be of more help, I hope you get some answers soon.

Take care.

[NatalieS22 in reply to GrittyReads]

Thank you x

[kjc1tisdell]

I really feel for you I hope you get some answers and proper treatment. How awful for you.

It's bad enough when it's down below in for instance on bladder.