Stages of endometriosis?: I'm Wondering... - Endometriosis UK

Endometriosis UK

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Stages of endometriosis?

Lost-girl profile image
10 Replies

I'm Wondering what stage endometreosis I have. My consultant (an endo specialist) says he doesn't like to stage endo as its only useful in terms of fertility and I'm not currently trying to get pregnant.

I think I read on a post in the past that pouch of Douglas endo makes it a stage 4 is that true?

My pouch of Douglas was obliterated. I had endo on both ovaries, my bowels and my right ovary was stuck to my right ureter and both were stuck to my abdominal wall. I also had endo on the lining of my abdominal cavity.

He also described my endo as extensive.

Does anyone have any idea what stage this would be?

Thanks,

X

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Lost-girl profile image
Lost-girl
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10 Replies
Mabes profile image
Mabes

I believe if it's involving the bowel or bladder it is stage 4.

hurtingforyears profile image
hurtingforyears

Where can I find an endometriosis specialist?

Lost-girl profile image
Lost-girl in reply to hurtingforyears

bsge.org.uk/ec-BSGE-accredi...

This is the link to a list of accredited centres.

Tina32 profile image
Tina32

I would think that if your consultant described it as extensive you would be stage 3 or stage 4. The stages depend on a number of things like how far it has spread and how much it has penetrated tissue it is on. As you mentioned bowel involvement this would be quite severe so more likely stage 4.

I have never had any of the Specialists I've seen refer to mine in terms of "stages" so I'd be interested to know more to understand the severity - although not sure it helps with a resolution.

Lost-girl profile image
Lost-girl

Thanks everyone. I'd just seen people on here referring to stages so wante to try and work it out. It doesn't really change anything it was just for my own knowledge.

K87S profile image
K87S

Search online for "Endometriosis (booklet) - American Society for Reproductive Medicine" it lists the stages.

Lost-girl profile image
Lost-girl in reply to K87S

Hi, thanks that link was really helpful. I guess I have stage 4 endo. :-(

Hollie90 profile image
Hollie90

Hi :)

My POD was filled, uterus tubes ligaments and bowel covered but because it hasn't penetrated through the structures im stage 2. Stage 3 is penetration of structures and 4 is when adhesions start attaching structures together x

Lost-girl profile image
Lost-girl

This is so confusing. I guess it's not surprising that even drs don't want to put a figure on it!

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