Hi everyone, I'll try to keep this brief.
After a long journey like we all seem to have had or having I had a laparascopy in June 2015. Endo was found overlying ureter, obliteration of POD, iliac fossa and a few other places. I had a cyst removed but the rest was left?. I pushed to get a referral to BSGE centre which I eventually got. I received an appointment to see a specialist. I ended up seeing her assistant who was lovely and had MRI scan. I was then refered to a diff consultant who was really nice and I felt like I was finally getting somewhere. The MRI had shown endo and I was told my bowel (sigmoid colon) was adhered to my uterus, there were also nodules found and adhesions. The consultant gave me his email and I was told to think about surgery and email him. I did so but got no reply, I waited but still no reply. I contacted his secretary who arranged for him to call me which he did. I asked a lot of questions which he answered. He said he would arrange surgery but again I heard nothing so had to try and chase things up. I eventually became so desperate that I emailed another different consultant at the endo centre to which I got a reply and my surgery was brought forward, I was over the moon.
Anyway the surgery date came round, I saw the first consultant I asked to see. She gave me the whole of about five minutes and briefly explained what she planned to do. I went down for surgery around 2ish and was brought on to the ward about 5ish. The day nursing staff were okay. But when it came to the nighttime I felt the nursing staff really didn't care. I suffer really bad with panic and was a mess mentally post op. My partner had to leave me at around 12pm, when he had to go I was hysterical (I don't know why I was like this) I felt like I was a complete burden to the nurses and they just left me. I was worried about post op problems as I was told previous to the op that I had to have treatment to my bowel. I wasn't told what had been done and really just needed reassurance. i was awake pretty much the whole night as I couldn't stopped panicking and needing a wee every 20 minutes. The morning came and I had thought that the consultant who did my op would come and see me but a different doctor did. He again briefly told me what had been done and told me the symptoms I'd had were nothing to do with endo! I was extremely upset at what he had said, he made me feel stupid. I was soon discharged and told I would have a follow up 6-8 weeks later....a follow up phonecall?!? I'm now 8 weeks post op and I haven't heard anything, this is not what I expected from a specialist centre but I now feel if I say anything to them that I will be seen as a burden. I just want to know what they did and what happens now? I feel I want to know the details, is this normal? I don't know what to do but the whole thing has just made having endo even worse( if it can get any worse). My pain is better but the other symptoms still controlling my life. If anyone could tell me what they think I'd be grateful, thank you to anyone who reads this xxxxx