Was officially diagnosed with endometriosis in 2008 wasn't removed due to being on my urether, pouch of Douglas with adhesions that essentially my surgeon couldn't deal with and was led to believe it simply wasn't possible which I know isn't the case any more. However after several treatments Zoledex fitted the best and stopped my periods for almost a year. Fast forward through IVF journey, blessed to have my little boy and breastfeeding I had no periods and therefore no major issues for several years (some complex bladder issues during pregnancy thought to be endo related but manageable) however since my periods returned 10 months ago things have steadily returned (although not yet to the extend before)
However I now have rectal bleeding 4 days before my period starts along with general pain and difficulty with bowel movements. Sec has been off for the full 10 months as so painful with random bleeding post (smear done already) My GP wants to refer to colerectal surgeon but I want to be seen in a BSGE centre. What's the right course of action here? To me it's primary cause is endo so anything else before is a waste of time?
Who do you all see for such issues?
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Shellfinboo
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Their logic is more that they are focus on the new rectal bleeding prior to my period rather than seeing it as a progression of endo. So my query was should this be the case initially or because logic would decide it was related that it should be straight to a specialist endo centre.
Thanks re referral pathways. I had seen your very detailed post regarding that prior to posting
And yes all things checked etc. plus it recurring only once per month 4 days before my period every day so they say it's unlikely to be the other suspects
My early symptoms of endo were similar to yours, rectal bleeding during my period and bowel problems, plus occasional abdominal pain. Consequently, my GP referred me to a gastoenterologist in the first instance - which was a mistake. I had a flexi sig, found nothing, and went back to square one. I wasted years suffering thinking it was 'just IBS' before an ovarian cyst led me to finally be referred to a Gynae consultant
So my advice is - if you think it's endo, ask to be referred to an endo specialist. They'll understand the bowel issues, and deal with it appropriately. Don't be fobbed off like I was.
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