Endometriosis UK
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Diagnosed with endo

I have recently been diagnosed with endometriosis, slightly raised blood (think she said 125 or something??? ) and I have a ovarian cyst. I have to have another MRI in 6 months  and a blood test. Does anyone have a smell down below?? I would say it smells fishy. It is very strong at times GP has tested for various but can't find anything.

Any ideas?

2 Replies

Hi - the blood test is CA125 that can be raised if there is infection or inflammation in the pelvis, but also can be slightly raised at different times of the month. So it isn't a diagnostic test for endo.

I think we can all be a bit fishy at times and bad blood can smell but if it is really pronounced then you might look up Fish odor syndrome (trimethylaminuria). Your GP should know of this. Diet changes can make a big difference so it might be worth investigating.


Thank you. I will look it up


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