Newly diagnosed with Endo

[Jodiex]

So today I had an appointment with a consultant gynaecologist after 3 years of begging my GP to do something about the pain I've been having. I must say she was absolutely lovely and made me feel so at ease. She did an internal examination and told me she could feel what she believes is endometriosis. She had referred me to an endometriosis specialist to discuss my options and to have a laparoscopy done by her rather than this consultant performing it. So I'm now a bit worried, firstly because I didn't know you could 'feel' Endo - does this mean I have a lot of it and secondly the reason behind why I'm being referred to a specialist because she feels it more appropriate for her to do it rather than them doing it. Has anyone had this before? My head is a whirlwind of worry

[JeanOsborne]

Hi Jodi, it normally means they can feel nodules. Having surgery with a specialist means you have less chance of it coming back or being missed. My advise would be to make sure you will be having excision and not ablation. With excision they cut the endo out from the root whereas with ablation they just burn the top layer off so it will just grow back again. Wishing you good luck.

[Jodiex in reply to JeanOsborne]

Thank you for your reply. I'm 24 and I really want children - will the type of treatment I have affect this?

[JeanOsborne in reply to Jodiex]

If you have excision surgery it should improve your chances of having children.

[Jodiex]

When she pressed it became very painful in a particular area. She told me the consultant specialised in oncology which is why a referral would be more appropriate. I've looked on that list and the hospital I am currently been treated at is not on there. I wish I had asked more questions while I was there but I was just trying to take it all in. I was offered to be put into the menopause but at the age of 24 this seems very dramatic?

Reply

[Jodiex]

That makes more sense then. I wish I'd asked more questions but I think I was just trying to take it all in. I'm writing all my questions down for my next appointment. I just feel so clueless, I'm in the North Yorkshire area. I can't see anything on the website I can only see Leeds and Wakefield on the list

[Jodiex]

My only concern with that would be travelling for surgery and having to sit in a car for a long journey home following the procedure. I will have a look at your page. In clueless with what I'm actually looking at, all these terms sounds foreign to me. I'm hoping my next appointment with the specialist will explain more. Thank you gor your help x

[Jodiex]

I'll have a look now, thanks so much