Endometriosis UK
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Copied and pasted from wikipedia;

Vertigo is a sensation of spinning while stationary. It is commonly associated with nausea or vomiting, unsteadiness (postural instability), falls, changes to a person's thoughts, and difficulties in walking. Recurrent episodes in those with vertigo are common and frequently impair the quality of life. Blurred vision, difficulty in speaking, a lowered level of consciousness, and hearing loss may also occur. The signs and symptoms of vertigo can present as a persistent (insidious) onset or an episodic (sudden) onset.

Persistent onset vertigo is characterized by symptoms lasting for longer than one day and is caused by degenerative changes that affect balance as people age. Naturally, the nerve conduction slows with aging and a decreased vibratory sensation is common. Additionally, there is a degeneration of the ampulla and otolith organs with an increase in age. Persistent onset is commonly paired with central vertigo signs and systems.

The characteristics of an episodic onset vertigo is indicated by symptoms lasting for a smaller, more memorable amount of time, typically lasting for only seconds to minutes. Typically, episodic vertigo is correlated with peripheral symptoms and can be the result of but not limited to diabetic neuropathy or autoimmune disease.

Hi guys,

So, for a while now I've been having 'unexplained dizzy spells' on occasion my eyes flick rapidly side to side when it happens :( it occurred to me just this afternoon I have all of the symptoms for episodic onset vertigo. I umm and ahh when I'm trying to decide IF what I'm feeling is directly linked to Endo or not, I felt a fire in my belly as I got to the end of the paragraph, autoimmune disease, correct me if I'm wrong but Endo is classed as an autoimmune disease? There's a test called Dix–Hallpike test, no doubt will turn into a battle with my Dr when I request it....

Anybody got any thoughts? Am I just being a bit...crazy linking them? I wanna hear your thoughts please!

Kelly xx

*It just occurred to me diabetes does run in my family, but I don't have it.

3 Replies

Hi. I Ave suffered with daily dizziness for 3 1/2 years now as well as constant wooziness so am unable to work, this s in addition to my usual endo symptoms. I've had the dix hall pike test twice but didn't show anything. I am under ent but no luck so far. Yu should ask for a referral to ent or physio as they can do the test not sue if a regular gp can. I made the link with the endo and my gearing therapist believel if I get the endo sorted the dizziness etc will sort itself out. I've also sen a neurologist who was awful and wrote me off before I walked in terms door as my scans were clear, same as the first ent I saw.what I don't get is that if it's auto immune related why do we not seen a immune consultant. I gave a first appointment at Oxford bgse so hope I can get some answers. The dizziness and wooziness are far more debilitating then the usual endo symptoms. Let me know how you get on. It may help to print the info off and give it to the gp, this wrked for me and got me a referral.


Hiya Beth, I'm at an outpatients appointment tomorrow with the Endo clinic (it's my first one seeing a person who specializes in Endo) I'm hoping to get more answers... You make a good point I'd never really thought about an immune specialist, there's so many things that are lacking with our GP's their knowledge is so short of what we need we walk this road alone (with the help and support of other Endo girls of course) blindly trying to pave a future for ourselves and live a life half lived :( this morning has been rough and it's only 2pm, of course my emotions haven't helped (it's my Grandads bday today I miss him so much) the pain in my stomach has had me doubled over, I'm lacking focus I feel spacey and my legs are hurting, it's funny how a little cry effects us so badly :/ xx


Sorry you're feeling rough. Take a list of questions with you tomorrow. If they suggest a lap maybe ask if this will help other symptoms rather then just the pain. Good luck. Xx


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