Endo in nose?: After my miscarriage in Jan... - Endometriosis UK

Endometriosis UK

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Endo in nose?


After my miscarriage in Jan 2015, my endo improved. There were still clots but the pain subsided.

It seems to be only when i am stressed that i feel severe pain now

I have pyloric stenosis shortly after i was born and had an op at 2 months old. It is right under the right hand side of my rib cage and is about 6cm long. I have very rarely had problems with it until recently where it feels likes like a stabbing pain. I went to the doctors and they couldn't feel anything. They said if the pain is still there in a few months then to go back but I am worried that the endo has spread there. What does it feel like when endo spreads to a scar/ scar tissue?

Also 6 months ago I had a hard lump in my left nostril. I thought it was a hard bogey (sorry for TMI there) but nothing can out. Its just behind the ridge inside my nostril so i cant see it. I have tried picking it (sorry for tmi) and no blood or anything. I have started to snore because of it (something i have never done before). The pain comes around my period where it feels like someone has literally punched me straight in my nose. The pain goes all the way through my sinuses and in my head. It seems to be always there for a day or two then then seems to come and go on other days . My nose hasn't changed shape on the outside.

I have also been having lumps come out of my vagina. They look like the type of clots I get when I am on my period but they are white. Again, until a couple of months ago this never happened to me. They dont have a pattern (like when im ovulating etc) and dont hurt

Can endo spread whilst there is not much pain? And if it has spread, does that mean my womb etc is messed up or could it just bypass that and go to other places?

Anyone have any clues to what either of these could be from?

Doctors have never taken me seriously as I am only 22 so am trying to not to go back until i have a bit more info

Emily x

5 Replies

Endo can spread through the body via the lymphatic system and as you have lymphatic nodules around your nose and throat, (they are there to deal with bacteria coming in from outside), then it can get there too. Doctors usually dismiss any claims that anything not actually part of the reproductive organs can be anything to do with gynaecological problems, but they are wrong.

You don't say if you have had any treatment for your endometriosis? Have you had a laparoscopy? Are you on any medication?

When it gets other places in the abdomen it can congregate in lumps which press on other organs, attach itself to organs or other tissue and stick things together. As it grows on the outside of an organ it can work it's way in too. Imagine it kind of like a mould getting on food and gradually growing along and into it. So it can cause different sorts of pain depending on where it is or what it is doing.

Emilina29 in reply to NW248

Thank you for replying. I was meant to have a laparoscopy 18 months ago but it was cancelled on the day due to sickness. As I am at uni, im trying not to have any ops if poss as i'll fail uni if i do. As i havent had the op they wont give me anything so i am trying options at home such as the endo diet, gentle exercise and other bits. I have been trying to hold the op off but its getting to the stage where i may not be able to do that anymore. I'm just scared i wont be able to have kids :-( i honeslty dont know what i'd do if i was told there was too much damage but i'm also scared to have the op for them to tell me the truth.

Thanks again for replying xx

Hi its attached to the cartlidge xx

It is stuck to the cartlidge so doesn't move.

Well its never been there before so it could be a polyp or it could be endo, i dont know hence why i asked a question. I was told by my gynae that endo can attach to any scar... no matter how old which is why i was told to watch out for pain as my scar is unlikely to be disturbed again as it was over 20 years ago i had it op (unless i gain loads of weight). My mum's friend had it confirmed in her nose and had to have it lasered off as it was affecting her breathing, she knew plenty of people who also had it confirmed by a GYNAE. And if you look online, there are plenty of confirmed to have endo in their nose too, and in many places such as their heart and other lungs. I was given a diagnosis based on my symptoms and my many conditions which tend to be found in endo sufferers. My mum also had it as well as my paternal grandmother.

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