Fed up

Hi I'm so fed up with everything to do with endo. I just want to feel well. I was originally diagnosed with endo 16 years ago when I had a laparascopic sterilisation. At that time I didnt really have symptoms it was just the consultant told me after the op that he had found endo and extensive adhesions. Over the past 5 years I have been in and out of hospital with severe back pain and abdo pain. Despite me telling them about my previous history I have had many diagnosis from back trouble to kidney infections. I had to have so much time off work that I was eventually sacked as I didnt have a definitive diagnosis. It is only in the past 4 or 5 months that a gynaecologist has seen me and said its all related to the endo. My Gp has put me on the mini pill and Im coming to the end of the third packet and its no better at all. She did say that it doesnt stop ovulation in everyone. I am back to see her next week to discuss other options but I really dont fancy the mirena coil. She did mention injections for 6 months but then what. My pain in my lower back is excrutiating and im currently taking liquid morphine. My bowels arent good either one minute I can be constipated and the next running to the loo with diarrhoea. I also have bouts of vomiting. The other thing is Im trying to work but just feel so tired and exhausted I dont know how much longer I can keep going for. Sorry for the moan Im just so fed up and feel so alone. I just want my life back.

1 Reply

  • Sorry you are suffering so much. Unfortunately you do have to just work through the treatments until you find one that works. It might be worth discussing another lap and laser surgery if you haven't already. I haven't had that yet but have heard many times it can bring about a clinical improvement for a good period of time.

    Hope something helps soon! Chin up x

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