Newbie to this!: Hi I've had endometriosis... - Endometriosis UK

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Newbie to this!

McGoogle1987 profile image
7 Replies

Hi I've had endometriosis for around 8 years,got diagnosed 6 years ago to which I had a lap and given tablets for 3 months and at the time seemed to help things . Fast forward to now, and I fear the endo has moved on to my bowel, hormones and emotions are all over the place and I feel pretty rubbish ! Not usually a down beat person but struggling with a couple of friends who are less than supportive and don't understand. I'm on a waiting list for my next lap so can anyone recommend any things I can do to perk my self up and also how to deal with people who struggle to emphasise with what endo does to the quality of someone's life?

Thanks ! X

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McGoogle1987 profile image
McGoogle1987
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dabba76 profile image
dabba76

Hi I sympathise re hormones & emotions! I went through a terrible 6 months and sought some counselling, helped enormously. Learning to not put yourself under too much stress is really beneficial.

No-one understands what you are going through. Surrounding yourself with unsympathetic people can be detrimental to your well being. Keep communication going & tell them how you feel if they continue to be unsympathetic cut them out your life. You need to think of yourself.

Kx

McGoogle1987 profile image
McGoogle1987 in reply to dabba76

Thank you ! That's really helpful! How did you go about getting counselling ? Was it through your GP? It's surprising because the one friend that is the least sympathetic is my longest friend ! A shame really! X

dabba76 profile image
dabba76 in reply to McGoogle1987

That is a terrible shame, I wonder what it would be like if the shoe was on the other foot. Going through what we are makes us more sympathetic to others I think.

You can ask your doctor to be referred. I self referred I found a charitable organisation and applied myself. They were great, you make a donation of whatever you can afford, they recommend min £5. They gave me 10 sessions and it really helped me. I'm so pleased I did it. Not sure how I would have coped without it x

McGoogle1987 profile image
McGoogle1987 in reply to dabba76

That sounds great, are you allowed to say on here what the charity is called ? Yeah it is a shame! Do you find exercise or changes to your diet helped at all for you ? Sorry for all the questions ha! X

dabba76 profile image
dabba76 in reply to McGoogle1987

No worries, glad to help. The charity was called mindspace, they are a local charity set up by someone in my area. I found them through google. Perhaps they have something similar in your area.

I don't have the energy to exercise, I've been helping my partner in the garden and shifting logs. I want to take up yoga to see if that helps with sleeping and well being.

I dramatically changed my diet last year, I got intolerance testing as I was sure there was something I was eating that was aggravating my symptoms. I cut out the things I was intolerant to and felt a lot better. It was very hard.

I stopped drinking alcohol last year too it was upsetting my sleep/tummy and I would get terrible hangovers so I stopped last December. I occasionally have a drink (holidays/birthdays) and regret it.

Kx

McGoogle1987 profile image
McGoogle1987 in reply to dabba76

Thanks that's really helpful! I've started not drinking if I can help it as it makes me feel worse than I ever used to and it fills me with dread to think that's what my next day will consist of ! I'll have a look locally to see if there is anything available . Is there anything you would recommend that has worked for you? I know everyone is different , but my symptoms just seem to be getting worse as time goes on and I'm shattered ! X

Booboo08 profile image
Booboo08 in reply to dabba76

best advice ever! come on here and talk to us if fed up. as ppl without endi wont/dont understand xxxx

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