New and unsure: I'm total fed up and feel... - Endometriosis UK

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New and unsure

Hmunchkin profile image
7 Replies

I'm total fed up and feel at a loss after having a scan which shows no cysts on the ovaries which is obviously good and clear blood tests.

Last time I saw the doctor she said if no improvement she will refer me to a gynaecologist. I'm going on Tuesday to push for this a I have just experienced the worst period ever! I always suffer badly but they seem to be getting worse and the pain and clots where much worse.

I just wondered how long it took you to be taken seriously and get a diagnosis? I'm also trying for a baby and have been for 7 months which I know isn't a long time but how long did it take for you to conceive?

Thank you for reading

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Hmunchkin
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7 Replies
Deb1511 profile image
Deb1511

Feel your pain Hun 😢 I have always had agonising periods lasting 5-7 days and clots. My son is ten did have miscarriage 2009 and have never tried again.

I have for last year or so said to doctor they are getting worse she suggested I go back on the pill to help with pain.

I've been in mortal agony since 6th September period started on 9th lasted only 3 days horrendous clots I have been to gp 5 times out of hours doc 3 times prescribed painkillers after painkiller that make no difference. Admitted to hospital twice with the pain and suspected kidney or fall stones had scan 15th sept no stones though cyst 4.5cm by 2.8 cm as I was in urology ward they couldn't help so discharged and back to gp how called gyne who insisted my pain wasn't related to cyst would re scan in 6 weeks was re admitted to hospital 22nd as blood in urine high temp racing pulse etc again sent to urology as though scan had missed stone. Was sent for ct scan 23rd urology surgeon and registrar said as well as cyst they think I have endo so have referred me to gyne I'm pulling my hair out pain in agonising today.

Hmunchkin profile image
Hmunchkin in reply toDeb1511

Aww bless you! I feel your pain too, feels like your helpless and a hypochondriac at times but I know I am not and I know my body! Hope it gets better for you! x

Deb1511 profile image
Deb1511 in reply toHmunchkin

Thanks very much you too just keep calling your gp Hun they have to do something for you xxxx

Hmunchkin profile image
Hmunchkin

Thank you it's just nice to know others have been when you have so I'm going this morning and will push for a referral as I can't take anymore palming off! X

Hmunchkin profile image
Hmunchkin

Hi shell it went really well thankfully! Saw a lively understanding doctor who agreed that she thinks I may have endrometreosis and referred me to a gyni so fingers crossed whatever is going on will be found! x

Hmunchkin profile image
Hmunchkin

I get to choose from 3 hospitals in Berkshire, Frimley, Heatherwood or Reading Royal Berks hospital so will have a little look on their websites about their gyni's x

Hmunchkin profile image
Hmunchkin

Aww thanks for your advice and I will look into the support group as can see how it help speaking to people in the same position xx

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