Prostap sucks.....: 3 weeks in and I feel... - Endometriosis UK

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Prostap sucks.....

Suescfc profile image
Suescfc
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3 weeks in and I feel like crap.never felt so down and depressed. Still have hip pain but stomach cramps are gone but I can't stop being angry and crying.Anyone, please tell me its normal πŸ˜₯πŸ˜₯

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Suescfc
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caroline81 profile image
caroline81

I haven't tried prostrap..but I feel so sorry for you and your pain...I felt like this weekend..I practically cried all weekend with pain.. It's an awful thing to feel like this..I only hope it starts to work...can you not go back to your GP tell them how you feel...This is your body and your life. I've to see my consultant next Monday and I don't care if he gets bored listening he needs to do something...I send you lots of hugs xx

Suescfc profile image
Suescfc in reply to caroline81

Aww thanks hun..Its actually helped the abdominal pain slightly ,still have hip pain but I feel so low and snappy..I've read that it can cause depression but you always think it won't happen to me..I'm going to make appointment with GP see if he has any suggestions. Hope your feeling better today huni xx

dawntildusk profile image
dawntildusk in reply to Suescfc

unfortunately i have been exactly the same. i finally gave in to it all and went back to gp yesterday. the persistant side effects of the injection have made me feel awful. i dont think i will agree to another one. :-(

sorry i cant say anything positive but u r not on your own x x

Froggy34 profile image
Froggy34

I hear you! I had exactly the same thing. I was meant to be on it for 6 months but only had 2 months in the end. Although it did help my pain I thought it wasn't fair that my kids had to see me in such a state everyday. When the effects wore off it was like a heavy weight had been lifted from me. It was great to have my 'mojo' back. For some people it works great but it's not for everyone. Sending hugs your way. X

Suescfc profile image
Suescfc in reply to Froggy34

Thanks huni. Its horrific! I've done nothing to snap at everyone cry and feel totally low..unfortunately I'm stuck with it for another 9weeks as I had the prostap3 injection as I couldn't get by to my consultant on a monthly basis as I would be in my holidays when the next shot was due. Dreading feeling line this for so long,I'm normally a happy go lucky person ,yeah I do worry about things at times but never to this extent.x

Nikula profile image
Nikula

My daughter had 4 injections. She is only 14 and spent the majority of her time in her bedroom crying or sleeping. She is so much better since stopping them xxxxx

Suescfc profile image
Suescfc in reply to Nikula

Aww bless ! Its bad enough for us adults but for a child must be horrendous. Hope all is well with her now x

Nikula profile image
Nikula

She had a first period since stopping the injections and although it has been bad once or twice it seems to be ok πŸ‘Œ

caroline81 profile image
caroline81

I just hope it gets better for you...I tried zoladex before that was years ago and the side effects I had were sweats but if much rather have that than pain..I have been on antidepressants for a while as my marriage broke down cause of this all..im really hoping and praying for all of us that a cure is achieved...you gotta try be positive on that...sending all love and hugs x

Suescfc profile image
Suescfc in reply to caroline81

Sorry to hear that hun. Rhs horrible disease does cause problems in relationships I agree,whether its through pain or lack of sexual desire t all adds to problems and with me wanting to just sleep and cry doesn't help ..willing November to hurry up so my consultant hopefully puts me in for hysterectomy. Hope u find peace huni xx

applebird profile image
applebird

Yes it's normal, give it another month to settle - if it doesn't by about that time it might not be agreeing with you so you could come off it to try something else x

Suescfc profile image
Suescfc in reply to applebird

Been to see gp who has given me some Tibolene(Hrt) so maybe these will help. I go on holiday in 11 days so don't want be feeling like I could kill the husband and snappy at my daughter .Can't come off it as its a 3 month lasting injection,hopefully after this time I'll be booked for hyste as it has helped pain.Thanks x

abbie103 profile image
abbie103

I'm 2 weeks into prostap and I feel horrible as we'll, not hot flushes just feel generally crap, I've been bleeding nearly a week now and I've never had headaches as bad as this in my life 24 hours I had one for other day and no pain killer was getting rid of it, I'm so tired as we'll no matter how much sleep I get I'm exhausted, and night time is a joke I'm waking up all night, how long r u on prostap for, have u had any other symptoms xxxx

dawntildusk profile image
dawntildusk in reply to abbie103

same here. started bleeding again after jab. lasted couple of weeks. at same time horrendous migraines and nausea. can count on one hand how many nights ive slept through since taking it mid july. hot sweats in day and getting night sweats also. feel so depressed and emotional all the time. cant believe how bad this has impacted on my life with my family, partner, friends, work, mental and physical state. i know its not the injection causing it all but has made me feel 100 times worse.

Suescfc profile image
Suescfc in reply to abbie103

Aww hun its terrible.. I had an endometrial ablation as my lining was so thick and my bleeds were horrendous so much so I was on iron..after the ablation I had no periods for 2 yrs, 1yr ago I started with horrific pain and after an MRI results given 3 weeks ago was confirmed adenomyosis.Consultant said hysterectomy would be best cure but wanted to check it was 100%the adeno causing pain.so here I am now miserable tired and I thought road rage was for teenagers and middle age men😁😁ive found deffo not πŸ˜‰πŸ˜‰..so hopefully after the HRT kicks in and the prostap runs its 3month I'll be happy on the hysterectomy waiting list..The prostap has helped abdominal pain .x

abbie103 profile image
abbie103

I feel the same I can't remember when I last didn't take a pain killer, I've found il lost my appetite as we'll I'm naturally skinny so this isn't good as I need to eat more not less, I feel like I have bi polar one min I'm up and then down, alls that's goin through my head is it's all for a good cause and il get my BFP at the end of Ivf treatment xxx

Suescfc profile image
Suescfc in reply to abbie103

Aww huni, you have enough stress with IVF, I know my sister had it 22 years ago and was lucky she had twin boys 1st attempt. Hope everything works out for you .hugs (((( ))))) x

abbie103 profile image
abbie103 in reply to Suescfc

Thank you just seeing this as the start of a very long journey, hopefully every bit of pain will bring every bit of happiness xxx

RedMae84 profile image
RedMae84

I'm going through the same thing, had prostap 3 month injection, before my surgery and it should be wearing off this month. It's been TERRIBLE, the depression, anxiety, mood swings and worst the aches in the pelvic area and legs. Mine also made me bleed a lot one the 3rd -4th week and since then just light spotting, it's not nice at all, but i'd rather have it than my period, while I still have one more cyst to remove.

Do try yoga and meditation, it's honestly made such a difference for me :)

abbie103 profile image
abbie103 in reply to RedMae84

Ive been bleeding for 2 weeks nearly I keep thinking its going to stop as it slows down but the next day its there again, ive had terrible head aches and very irritable as well, I think my symptoms will change again once its in my system proper, still ogt a long 9 weeks to go yet xxxx

Suescfc profile image
Suescfc

Do go to your GP if u feel you need help, I was never told about HRT and when I went to gp's he said "oh yeah consultant has written and said you would probably need it" I'm 2 days in with HRT and another 9 week to go with prostap x

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