Advice and Support needed :(: Hi All, I... - Endometriosis UK

Endometriosis UK

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Advice and Support needed :(

mummy22boys profile image
3 Replies

Hi All, I have been getting pain in my Right side Ribs just before my Period is due and as soon as I start bleeding the pain travels around my back into my Kidney area, It Burns like hell, feels like there is something sticking out of my ribs, I feel tired constantly even after waking, Feel sick all the time, light headed. And once my period is out the way I have a few days I feel half normal then Boom ovulation pains and OMG it hurts, Feel like they are being ripped out.

I have had 2 ultrasounds = Normal

CT Scan = Normal

I was referred to a Gastroenterologist who said he was going to do a Barium Enema to see if there was evidence of Endo, but came back normal.

I have now been referred to a gynae still awaiting an appointment, My GP seems to think it is Endometriosis and said they may just do surgery or a MRI. Will a MRI show it?

Also I am just feeling very down as no pain relief is touching it and I am sick of feeling ill for 3 weeks out of 4.

Anybody else with similar symptoms?

S

x

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mummy22boys
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3 Replies

Hi, I sorry to hear you're suffering. I have endo on my right ureter (the pipe that leads from your kidney to your bladder) and I get pain in my right side where my rib cage is when I have my period and during ovulation. I also went through a stage of having recurring UTIs which made the pain so much worse.

Endo doesn't show up on an MRI. Or any other sort of scan or x-ray. The only way to confirm the presence of endo is a laparoscopy. It's a simple procedure and would give you an answer either way.

I'd see your GP and ask for a urine test for UTI.

Good luck xx

unlucky2014 profile image
unlucky2014

Hi

I suffer from a rare condition (rare because it isn't diagnosed easily) called Pelvic Congestion Syndrome - I get EXACTLY the same pain. I recently (as posted) had an MRI where they put a contrast dye, and it highlighted the problem on both sides (they originally thought it was just the left side) - I would deffo grab the opportunity too have an MRI with contrast dye as it shows ALOT of problems.

mummy22boys profile image
mummy22boys in reply to unlucky2014

Hi there, Thanks for your reply. As soon as I get my appointment I will be asking as I have had all the other scans and tests. Thanks :)

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and off back pain and aching legs been feeling very sick and have headaches is this normal? Xxx