Endometriosis UK
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Two years after lapo- not much improvement

I was diagnosed with endometriosis when I was 18, I'm now 20. I always suffered with severe period pains and one day I just couldn't have sex. Since my lapo, and insertion of mirena coil I am just confused as I was before my diagnosis. I feel like my doctor and gyno really didn't tell me anything about the condition and I've been left to deal with it on my own. My gyno told me the coil should prevent the endo from coming back but I don't know what the chances are of it not working? Since my op although I've not had periods, I've still had severe pains (although I'm not sure whether it is the coil causing these) and sex is still painful, can't do certain positions and has to be really slow. Recently my pains have become so severe, I was shopping yesterday and I literally had to sit on the floor and curl up in a ball. Is it possible that I will have to have another lapo? I know when I was diagnosed it didn't show up on an ultrasound so I went into the op not knowing if I actually had it. Sorry if this is long,

I am just so uninformed about the condition I have

1 Reply

Hi Lauren

It sounds as though you have only been seen in general gynaecology so far and unfortunately deep endo can often be missed. The good news is that you are young and can avoid being one of the women who wait many more years before the true extent of their endo is found. Hormone treatment works to try and reduce oestrogen levels to mimic pregnancy and at best might halt the inflammation and growth of endo by starving it of ostrogen. But deep endo often involves scar tissue (adhesions) that can glue organs together and cause what can be such excruciating pain as to bring you to your knees and is a pain that is not due to oestrogen. You can also have hard nodules that can press on nerves and again cause pain that is not associated with oestrogen.

You have options for better care. First can you click on my name and read my first post on endo and its many symptoms and the one on Pouch of Douglas endo to see what you identify with and to get a better feel for your condition. Then look at the one on how to get a referral to a specialist centre . You need to get yourself as clued up as possible so you can now take charge of your treatment. If you need any help pm me. x


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