Recently diagnosed...

[asdfghannah]

Hi,

I've recently been diagnosed with stage 2 endo. I've had the horrible pains for 2 years, alas, doctors couldn't find anything. Countless scans, tests, even an op. Nothing. 2 months ago I had a second operation with some specialists, after I suggested that it was endo, the doctors laughed at me and said I was too young for it and I didn't have all the right signs for it. I received the doctors notes in the post, noting everything that had been found in my operation. I'm not 20 yet. Nowhere near. My heart is breaking before ive had a chance to live. Where my endo is, it's affected my ovaries, I have a very limited chance of having children. Which would explain a few things. I've got another referral coming up and they want to put me in for another but more extensive surgery.

I just want someone to talk to. Nobody my age or in my family knows what I'm going through, how hard it is for me to cope. I'm not the sort of person to ask for help, I'm just desperate.

Thank you for reading,

Han x

[Tboag]

Hi Han, you poor thing, it's a very hard thing to deal with, especially at your age, don't yet rule out the fertility side of things, it's amazing what they can do,

Just try to focus on getting yourself sorted, I'm pleased to hear that you. Are seeing a specialist, is it in a bsge specialist Endo centre, if it is, then you are being looked after by the best, I'm 39 and have been diagnosed recently with endo and ADENOMYOSIS, I'm due for a hysterectomy for a cure for adeno, 18th July july,

Where did they find the endo, mine was behind my uterus and on the ligaments to the uterus, mild, but my adeno is servere, I'm in daily pain some worse than others,

If you ever feel the need to talk privatelly please feel free to message me,

Where do you live, have a look on the endo uk webpage, there is a list of groups, unfortunately there isn't one in my area, although if I could find a few of us around me I would love to start one up

Any questions fire away, if I can't answer someone will,

Good luck and keep that chin up.

Xxx

[hurtingforyears]

I am sorry about the pain.

It's real. I hv hurt for over twenty years.

I am here.

[hurtingforyears]

A hysterectomy does not help. I had one and regret not being able to hv more kids ;being my only child passed away.