Hi, I thought it would be best to give a quick introduction into who I am, and why I have joined this site, My name is William, and my Fiancee Amy suffers from Endometriosis quite severly, having been diagnosed now for 3 years, taking over 4 years for her to get diagnosed. Since then she has had two lap's, the first being full ablation of endometriosis, the second being excision of all Endometriosis cells, then to be told quite bluntly by the consultant.... there is nothing else that we can do - so for the foreseeable future you now need to control your med's and adjust your lifestyle?
We weren't happy with this as an answer as Amy is 26, and no-one should ever be told this as a final answer so we have pursued a second answer as she currently takes a concoction of 23 tablets a day, so surely there must be an answer?
Amy and I have been together for coming up to 11 years now, and the last few have been particularly tough, I find it bewildering that Endometriosis isn't known in the medical profession, and that you have to push and push and push to get any answers.
There is so much more that we need to do to raise awareness about Endo, and support needs to be offered to the partners of people suffering as-well, I can't remember a time (i've been to every single one of Amy's appointments with her) where the doctors have even considered the emotional affects it has on the family - Oh wait - there was that one time that the doctor was convinced it was an STD, despite us being together for 7 years at the time, forcing us both to go get a full sexual health screen.
As a result of this I am now aiming to raise sponsorship for Endometriosis UK, a charity that have helped so many women over the last few years including Amy, and equally to raise awareness about the condition.
I will also contribute on this site as much as I can, and will offer a 'partners' perspective if anyone would like to hear.
Please have a look at my Just giving page , share and sponsor if you can, lets raise awareness about this terrible illness together. justgiving.com/will-littlee...
And have a look at my 'End to End for Endo' videos on youtube - please post any questions or anything that you would like me to talk about in the questions and I will answer them in my upcoming videos.
Edit - just adding a link for 'What is Endometriosis'