Endometriosis UK
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Endo Survivor Letter

For Oldies & Newbies alike - I'd like to share this link. It's a great letter written a while back by my friend & fellow endo sufferer Heather.

If you've read this letter before, I do apologise. If you haven't - read it & show it to your friends & family. You're not allowed to copy it onto personal websites without permission. Luckily I do have such permission; which is why I'm sharing it now.

It's a reminder to us all that we are not to blame for this disease. We didn't cause this illness. We didn't contract it - it is something in our bodies from birth. My grandmother had endometriosis - as did one of her nieces; so for me this is something passed down to me by my father. Do I blame him? Of course not. Am I angry - yes. But not with him. I'm angry with the way that no one has heard of this disease. I'm so tired of having to explain to people what endometriosis is. Instead of a blank look, I long for understanding and acceptance.

It's 20 years since I was diagnosed - yet I'm hearing the same old stories from newbies.

Don't suffer in silence. Shout it from the rooftops that you have endometriosis.

I wish I had been brave enough to do so 20 years ago.

Maybe then I would have been believed.


3 Replies

I'm in my mid 40's and it's been up and down for me for 20yrs. I CAN completely relate to the letter and have given up on explaining. I've accepted the fact that I don't have kids and love my nieces and nephews to the moon and back. I just wish a cure can be found as I see and hear from colleagues going through the same pain (even worse).


Thanks for sharing this link, was a great read and all of us can relate to some degree. I've only been suffering with the pain for 2years and still haven't had a diagnostic lap due to being fobbed of by gynos however my GP is certain it is endo and is very helpful with pain control and my emotional well-being, I don't get support from my family and a few friends but my bf is incredible at helping me, plus my sister has just had a baby and I really am happy for her and he is just the cutest we boy like but I've been finding it difficult to come round not knowing how my fertility may be when the times right so I can definitely relate to the survivor letter and will be sharing it with friends and family so they might see my side of things finally.


Thanks for sharing. It's a good article :-).

I relate to what she says like to a 90% of that letter.


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