Endometriosis UK
36,180 members32,160 posts

I hate living like this

So it's been five months from having a diagnostic laparoscopy to find out they didn't find any endometriosis, I was put on mephanamic acid tablet to see if it was dysmenorrhea but the pain is back even with taking the tablets. I've tried two different pills and a mini pill and nothing seems to work.

Was meant to be at my friends house on Saturday, she picked me up and got to hers then turned back and took me home because I was in so much pain, went chalk white and was swearing (if anyone had seen me they would have thought I was on drugs) once I got in my house it took three hours for the pain to ease off a bit, ended up being sick because if the pain.

I'm fed up of being in so much pain and just trying to get on with it.

I have a fibroid tumour but the doctors didn't think it was relevant to my pain.

I have got an appointment to go back to the doctors on Friday but don't know what to ask for in relation to helping myself, not sure if its alright to ask to have the fibroid removed to see if that helps.

I just want a normal life, getting quite depressed every time that time if the month is due because I know how it will effect me.

What else can I ask to be done?

Any suggestions are welcome. I just want to be pain free. X

1 Reply

Have you considered arm implants like nexplanon - it lasts 3 years and should stop periods in most women. And no tablets to remember to take.

There is also the injection Depo-provera which is every 3 months for max 2 years and that too stops periods in most ladies within a year of starting the drug and depending on your bone scans you may be able to continue on that after the two years if it helps a lot.

The mirena coil may be possible depending on your fibroid, and that has a 5 year life span to stop periods in most ladies.

There are options, but I would also suggest if you have not yet been checked for Adenomyosis that you discuss this with your GP after reading the website

adenomyosisadviceassociatio... whenever no endo is apparent in lap op, but all the symptoms are there for endo, then adeno must be considered a strong candidate for the cause of the pains.

Treatments are the same as for endo, either surgery to remove it, which is hysterectomy in the case of adeno, or long term period stoppers.

Hope you can get to the cause and get a treatment option to allow you better ways to control the pains.

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