Really frustrated.: Went to doctor with bad... - Endometriosis UK

Endometriosis UK

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Really frustrated.

toboggajess profile image
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Went to doctor with bad pains in my bowel during period and bleeding about 7 months ago, doctor suspected endo so put me on injection to control it? since having the injection i have been bleeding constantly for 6 months, no breaks, very frustrated and angry. now being referred to a gyno, does anyone know how long this takes? just basically looking for some support or reassurance, very fed up with all the waiting around.

- love, jess.

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toboggajess profile image
toboggajess
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If it's the Depo Provera shot, I have just taken my 3rd shot (they want it about every 10 weeks for me). and I still have been bleeding (on month 5 now). I have gone a solid month with bleeding, then another 3 weeks no blood, then another month bleeding, etc. I still get cramps, and I still have daily pain (although, it is lower pain then I had before). All the Dr.'s and nurses I have talked to say it can take up to a YEAR before your body accepts the hormones. At first I was like, as long as the pain stops I don't care if I bleed everyday. Now after bleeding for 30+ days at a time, I am not so sure. The bleeding has lightened considerably for me, but like I said; I still get horrid pains still.

stevieflp profile image
stevieflp

Hi - quite frankly I believe it is wrong to stick ladies on these drugs where endo has not actually been confirmed. These drugs are only generally for six month use and supress endo due to chemical menopause but when the drug are stopped, any endo will spring back to life again. They should have referred you to an endo specialist consultant to investigate whether it is endo - the only real way to treat endo is to have it removed by excision surgery (which can be done keyhole). Drugs are only a temporary solution (which I guess in some people's life circumstances can be useful for a short period) but I don't think they should be prescribed where it isn't even diagnosed that it is endo. I guess it depends what the injections is as it may have been a three month birth control injection with view to stopping periods and supposedly endo - but again, this isn't really going to treat the actual endo, only mask it.

At least you have been referred to a consultant now but GPs tend to refer you to the gynae team at the local hospital - not always of course, especially if they are more clued up re endo - but with gynae consultants it can be very hit and miss with them as to how experienced / skilled up they are regarding treatment of endo as they tend to be 'general'. Some specialise in obstetrics, some in oncology, some in fertility etc with endo and other gynae problems outside their specialism being a string to their bow rather than their main expertise. No doubt there are some who have chosen endo and are better than others in this area but it makes sense to see a specific endo consultant for endo. Check out the background of the consultant you have been referred to so see what their area of expertise really is.

All best wishes x

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