I was admitted to A & E in may, due to a torsion of the ovary (caused by endometriosis) my discharge notes did not include ANYWHERE the word, ovaries, endometriosis or PCOS.....NOTHING!!!
we must fight and educate doctors that this kind of action from them only minimises the catastrophic pain, that taking years and years to get correctly diagnosed after many of us were told It was in our heads at least once by a doctor causes, and fight to get correct terminology on all paper work and very LEAST mention the condition.
Fighting for the NHS to provide correct treatment for this disease is hard enough, do not let your doctors / hospital staff lessen this condition by ignoring its very devastating effects. I have contacted PALS at the hospital and raised the concerns, They are asking the doctor to address with their junior staff the correct ways to report on a woman having been admitted to hospital in an emergency due to this condition. The doctor on his rounds the morning after my 3 doses of morphine, noticed the on-call gynae doctor the night before had ordered a scan. He clearly told me, the cyst will have either twisted and dispersed and be noting to see, or will have been twisted and still be there. It had gone.....absolutely no mention of this in the discharge summary. Maybe it was written in a discharge letter, that we as patients don't get a copy of, however to keep fighting and getting recognition of the devastating problems this condition causes we need it acknowledged on ALL accounts. To write "reassured and sent home" is more than a kick In the teeth for any endo sufferer writhing around in absolute agony, I and most do not need any reassurance from any doctor, we need them to provide the best care and funding for this condition. PLEASE EVERYONE FIGHT FOR YOUR NOTES TO BE ACCURATE, so important.
I have recently found out the reason why mr trehans peeling technique isn't done by any other doctor is because the nhs have never considered funding the training. lets fight to get this op on the NHS!