Watch This Morning tomorrow for Endo Awareness week

[Cat247]

Hi ladies, this morning are doing a feature tomorrow about endometriosis. If you have any questions or want to email in looks like you can do it via the ITV website before 11:15 tomorrow. I'll be tuning in.x

[Hidden]

Wow really that's amazing! Thanks for letting us know!!!

[Cat247]

No probs. there's not enough awareness out there so great to see it being talked about on such a big tv show.

[Hidden]

Actually I think we should all email our stories and any questions to [e-mail] urgently before 11am tomorrow. Entitle the email Endometriosis Hell, or Endometriosis Chronic Pelvic Pain, (something Daily Mail like or just dramatic enough to draw attention) and ask a question, even if you know the answer.

I think we need to all email in so that the discussion won't get overtaken with discussion about PCOS - the media really do cover PCOS enough and this is Endometriosis Awareness week after all, not PCOS awareness week.

I will email them and have alerted the CEO of Endo UK to your post. Well done for spotting it. I watch This Morning and had no idea they were planning to cover it.

[JaneHJ_CEO]

Delighted to say that Alice Smith, Young Ambassador for Endo UK will be joining Dr Chris on the sofa, so please do send in your questions.

Helen

[Hidden]

Oh that's just fantastic. Thanks so much. Good luck for tomorrow to Alice Smith.

[Tina2609]

hello ladies just joined so glad I have otherwise I wouldn't of known about this! Xxx

[Elenna]

That's great, good luck for tomorrow!

[Lillil]

Helen is it ok for me to put screen shots of endo uk leaflets/info on facebook? Was part of my plan to raise awareness they all say endo uk on them. Didnt want to break any copy right laws!

Looking forward to this morningx

[Cat247]

Sent my email and question in. Yay! Lets hope they read at leat one of urs out.xx

[Brownlow]

Brilliant. Thanks for alerting us. I encourage everyone to send in questions and comments even if only for This Morning to be 'overwhelmed' with responses to the point that they do more pieces on endo and continue to raise awareness and grill a health minister on a future show.

[Cat247]

I agree Brownlow, I had a email back saying they trythere best to respond to as many emails as possible within 5 working days, so i am guessing even if your email doesn't feature on the show they will at least try and reply to you.

[faffy73]

I've sent an e-mail in too!! Thanks for letting us know. XX

[wp22]

It isn't very rare for a 12 year old to have endo. The only reason they think that is because it takes too many years to diagnose and by that time the girl is in her late 20,s or 30,s and this gives a fake reality of the age a woman can have it. It was so wrong that they made Philip schofield say that on national tv. Incorrect information about this disease yet again!!!

I too have sent an email. The more the better. Let's hope someone takes notice for once and does something positive for us x

[wp22]

In the 'e-mail session' the messages read out were from women who were young when starting symptoms. It much more common in young girls but you can get it anytime throughout your life through other things like c-section, pregnancy loss, child birth, basically trauma to the womb. X

[Cat247]

I was caller number 1!!!! Can't believe they used me. I know what you mean wp22 but at least a bit of awareness has got out there. To really truly get the point across they would need a much bigger timeslot on the tele. I will keep them updated on my progress as tehy asked and you never know maybe i'll ge a slot on tele one day to help spread awareness even more.x

[Hidden in reply to Cat247]

Oh Cat that is amazing! You made me cry, no joke, because I am in the same situation as you. You sounded so lovely. Well done you, I'm so impressed, you really held it together so well.

[Cat247]

aww thanks. I had to have a fake name so i was kelly but i'm actually cathryn, haha. I really wanted to talk more about my illness and symptoms but had to be brief with my question. I will keep in touch with them about my progress like they asked and you never know i may get to talk more in depth about it in the future. Alice did really well earlier on in the show too, I was crying when she was talking about it, shame for her she was so bad so young it's bad enough bsuffering so bd at 30!!x

[Hidden]

Hey Cathryn! Yes I could sense you had more to add, I hope they do another longer slot next time. They sounded genuinely interested to know whether you have success conceiving, and I have a feeling that if you do, they will have you on the show to tell your story.

I have to say, I thought Mr lovely Schofield seemed quite shocked by it all. Could just see it on his face. More than that of Holly but she did also seem shocked by Alice's story. I just thought her mentioning the avoidance of stress and conceiving was, even though well intentioned, a bit missing the point. But I won't judge her for that, I like both Phil and Holly and they were both very nicely sensitive about it.

Have you had an operative lap before? Presume not.

Anyway, I can answer the bit about the 'conception window' post surgery. They will tell you 6 months, very likely. I have had two ops with two different surgeons and both of them gave me the 6 month window. Apparently this is fairly common, with stage 4 endo anyway, which we both have

Although the second surgeon was less positive for me, and recommended IVF ASAP. Which I still have not done as I really don't feel well, or strong enough physically, or emotionally.

My two surgeries and all the pain have taken it out of me. I gave up my job in the end, as was too stressed and ill to return to work. But my job was stressful. I am late 30s so things more pressing for me if you consider age only. Every year makes a difference to egg quality with IVF and I just wish I did it years ago.

I have now been given a max 10% chance of IVF working. But there are reasons for that, mainly because I have recurring bilateral endometrioma which has damaged my ovaries, and therefore also damaged my egg supply.

I have been through a long journey on this. If you need any advice just email me.

I can recommend certain things re ovulation, that Dr Chris wasn't 100% correct on. Also I would highly recommend you get your AMH measured BEFORE your surgery..xx

[Cat247]

Thanks Yellow Rose, I will definately be messaging you for advice, you have kindly answered my posts before on here and have always been very supportive. Yeah i love phil and holly too and you could tell they genuinely were trying to understand. I don't expect people to know all the facts who haven't heard of it before. Can't believe i got picked! haha. I have had a lap back in november but the surgeon didn't do anything as endo is so bad. I have frozen pelvis so its on the bowel, bladder, ovaries etc... Next op is to clear up what they can. I'm so sorry your chances are that low now, thats really a shame. I luckily have a little boy who is nearly 5 but my problems started just afer having him really, looking back i know now i have had this since being a teenager but it became debilitating about 4 years ago but i just kept getting treated for a bad back! That would be great if they did have me on the show, i feel like i have so much to say as do most of us ladies i'm sure.

What is AMH? do i ask mt GP to check that?xx