Additional pains: I have had endo for... - Endometriosis UK

Endometriosis UK

70,649 members52,127 posts

Additional pains

Lana05 profile image
0 Replies

I have had endo for nearly 8 years now. Symptoms first started when I was 17. At 20 I finally got diagnosed with endo, stating difficulty in fertility which was when i had my first op. I had been on and off the pill since 17 - I've currently tried 3 different types of pill, as this is meant to keep everything in check (no success) Every day the pain continued, getting worse for periods, a few times doctors have told me to not stop taking my pill - meaning no period. But after 3 months of taking the pill solid, it began to effect my body. At 23 I had another op, more endo was found as well as choco cysts, no success again. So at nearly 25 I am being referred back to another gynae at another hospital. In the early days it was just a constant pain the stomach, later the back to. In the past year - the loss of feeling in my legs and recently arms (which feels like pins and needles as well as a numb feeling in both) the past few months a pain in my chest as occurred making the loss of my arms worse. Every few months I struggle to walk even without periods, and in despartate times have to crawl as a way of movement. Has anyone else suffered this? If so what was the outcome? Any suggestions welcome.

Written by
Lana05 profile image
Lana05
To view profiles and participate in discussions please or .
Read more about...

You may also like...

Years of endo pain & misery and now additional pain & worry as my uterus is attached to my bowel.

years with endo. I've had a number of laparoscopies, excisions and D & Cs. 2 weeks ago, I had a...

Intense back pain and sciatica..pain killers daily

took quite a few months for the pain to get better but I still get some period like symptoms at the...

Up at 4am in pain :-(

every few days and the most horrendous pains. I had to take time off work for the first time as I...

Endo pain- is it normal to have the pain everyday?

everyday pain? For example, i once had my period for 5 months straight and tried countless pills...

When do you get pain?

a lot. The pain is getting worse every month. I do have pretty bad period pain but pain killers...