Does endometriosis spread throughout your... - Endometriosis UK

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Does endometriosis spread throughout your body as cancer does?

Gracelove21 profile image
13 Replies
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Gracelove21 profile image
Gracelove21
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13 Replies
Miwa profile image
Miwa

Mine spread to my bladder, bowels and around my liver and gall bladder xx

SharonDM profile image
SharonDM in reply toMiwa

Do you mind me asking, how it was discovered that it had spread to your other organs? And how was it removed?

Miwa profile image
Miwa in reply toSharonDM

It was only discovered during radical excision surgery. It was removed by the radical excision itself (shaving the fascia, which is like a layer of skin on the organs)

Princessm profile image
Princessm

Yes it can spread through anything muscles bone organs. I have it and waiting to see if it's spread. Mums friend also had it and hers started to grow up her body and near her chest and it can grow down the legs to. It's like a weed it will connect it's self to anything and grow were it wants just like a weed in the garden x

Immunewolf21 profile image
Immunewolf21 in reply toPrincessm

Hi princessm, I hope it's one of the good days :) I was wondering how your mums friend knew her endo was spreading ? This is because I seem to be getting lots of skin infections which have followed a pattern upwards along my spine and am thinking it's the endo causing it.

Princessm profile image
Princessm in reply toImmunewolf21

I think it was because she was getting really bad pains so when ten did the lap they looked around more and looked up the body more and found it although that does seem like it could possibly be soothing to do with it xx

madtabby profile image
madtabby

Its not quite the same , endo spreads were it finds an avenue. It can go as high as the lungs but cancer spreads via blood & lymphatic system so can go anywhere . Endo does not enter the brain or extremeties as cancer does. But can be felt in the legs threw nerve pain via the pelvic cavity having endo present.

Its hellishly painful but you wont die of endo .

X

in reply tomadtabby

Sorry to disagree with you madtabby but endo does enter the brain. My sister has it in one third of her brain at present. xx

madtabby profile image
madtabby

Owhhh my god really !!!

Ive done research and not come across that . Im sooo sorry to hear about your sister !! Whats her prognosis ?

I stand corrected !

sparkledancer profile image
sparkledancer

I've read too that it can spread to any part of your body, including your brain and eyes. Within Endometriosis' UK's Annual Report 2013 it says "Endometriosis has been described by some medical practitioners as a benign cancer due to the way it manifests and

develops in the body".

I need formal diagnosis of if my endo has returned - but mine is spreading and I have it in weird places like my shoulders, ribs etc. It is the most horrendous condition.

Gracelove21 profile image
Gracelove21

thank you all for all of your help is has answered a lot of my questions!

Gracelove21 profile image
Gracelove21

if it has spread to your lungs will it make you have a hard time breathing or pain in your chest?

Lumps1984 profile image
Lumps1984 in reply toGracelove21

Hi Gracelove, are you still having the chest pains and did you find out what was causing them. I've had chest pains the last 4 months and doctors can't seem to find what's causing it so I wondered if it was something to do with my endometriosis. Thanks

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