I have just been diagnosed with this rare condition after a 3rd laparoscopy. No hormone treatments have worked for my Endometriosis and now with this on top and no information available to me whatsoever I am really worried. Im only 18 and my life is a constant struggle through pain and bleeding! Was diagnosed with Endo at 16 but had problems since I was 11! Anyone with any info on this condition would be appreciated! !