He wants to do a telescopic viewing into my bladder for either endo or interstitial cystitis/ painful bladder syndrome. He says these aren't related however I've read quite a few endo suffers also have this condition too.
Does anyone else have / suffer with this syndrome. What is the likely-hood of it being this. How do you all cope with it, your symptoms etc??
Any help please.........
Thanks all xx
Written by
claire87
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Hi Claire87, I too have been suffering from this. I was diagnosed with really bad Endo 4years ago. I had to have emergency bowel resection, It's now been a year and 2 months i too have been suffering with painful bladder problem. My GP thinks I have Endo on or inside my bladder, I get infections every month, I get burning, stabbing unbearable pains when I urinate before during and after. I while this is going on I can't eat solid foods at all due to pains and feel like vomiting. No pain killers work and I have had so many antibiotics they don't work either, I have been admitted in hospital as I couldn't cope with the pains, sometimes I'm just in bed all day with hot water bottle just crying and trying to ride it out until it all stops. Last month was very hard as it lasted all month. I am having my telescopic test next week to see what's going on with my bladder. I think it's all to do with Endo as bowels, bladder, overies are all close by.
I wish you good luck with your test, hope they find what is wrong and sort it out.
Hi I'm having cytoscopy and biopsy Tuesday to see whats going on as have constant bladder pain legs back etc on provera for the endo had urodynamics test my gyne doesn't think its endo related so just waiting to see more nervous about this than laps because weeing is becoming such an issue. It's good you're getting it looked into knowing what the problem is I feel is half the battle.
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