my mum heard on the radio about a new sur... - Endometriosis UK

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my mum heard on the radio about a new surgical technique- some kind of deeper surgery to remove root cause of endo- anyone know about this?

lm330 profile image
11 Replies

Hi girls,

sorry for posting twice in as many minutes. my mum was saying she heard something on the radio about a new technique which goes deeper to remove endo so that it cant grow back. my endo keeps coming back and ive had multiple laps. my symptoms are excruciating at the moment as they only ever provide some temporary relief, and i would dearly love a longer term solution. i know im not alone on this. my question is: has anyone else heard about this and know any more about what this technique might involve or if its only available privately? i want to try and get things sorted out as the chronic pain i suffer from has left me unemployed and is putting strain on my relationship- we are due to get married this year!. thank you in advance for any advice and info :) cheers, lauren x

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11 Replies
Lilly83 profile image
Lilly83

Are you talking about excision or something deeper than that? I had excision, I know a lot have laser/ablation which can grow back much quicker

Lauren x

lm330 profile image
lm330 in reply to Lilly83

hi lilly, ah that could be it! i had laser. did it work for you?x

Lilly83 profile image
Lilly83 in reply to lm330

It seems to of yes, I had surgery in May for a look around, then had Prostap for 3 months, then end of July I was booked in for extensive excision of endo, had a 6 hour surgery, I had it literally everywhere.. Bladder, bowel, pouch of Douglas, sacral ligaments, ureters, had a cyst 15cm and tubes tangled, when I came round he said he was confident he had got every last bit. I'm surprised people still use lazer. Guess its just finding a good surgeon xx

lm330 profile image
lm330 in reply to Lilly83

can u inbox me the details of who u went with? i dont mind if i have to travel or go private. i have insurance thank god, fed up with nhs. and yes i had two laps with laser. both times they found more. ive had no surgery and no treatment except mirena for past 3 1/2 years and my symptoms have been getting steadily worse and worse. ive had to give up work and im getting married so i feel now is the time to take action and regain my life. thank you for sharing ur experience :) and i hope things stay good for u :) xx

stevieflp profile image
stevieflp

Hi Lauren - I have sent you a private message as I have undergone this kind of surgery.

Best wishes

Gemx85x profile image
Gemx85x in reply to stevieflp

Can you tell me more about surgery please

stevieflp profile image
stevieflp in reply to Gemx85x

Hi Gemx85x. I have sent you a private message. Best wishes. x

Gemx85x profile image
Gemx85x in reply to stevieflp

Thanks Hun I'll let you know when I've received it xx

lm330 profile image
lm330 in reply to stevieflp

hi stevie, thank u so much :) i will read the message and reply to u :) i just need to find something that works better than the laser ive had twice already. xx

As-17 profile image
As-17

Plz can u inbox me as well stevieflp thanks xxxx

Gail50 profile image
Gail50

Hi, I was wondering did you find any info on this ?

Sorry to hear things are so bad for you :-(

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