New diagnosis.

[Jembee]

Hello lovely girls,

Well I had my appointment following my key hole last week. I lost my right tube after having a 15cm removed and my appendix in April (this was not endo related!)

My endo has been classed as severe, my right ovary is missing they think it's attached to my bowel but not 100% sure.

The left side is covered in scarring and attached to my pelvic wall. Also have some in my pod.

Been told I have a bulky uterus??

They think that my only option is to have ivf for children but I need to go on the pill in order to suppress ovulation.

Having a period ATM and I feel like hell, I went to work yesterday and they all said I looked grey! I had 5 people just staring at me!

I also work for an airline as crew so my worst fears were answered when the doctors told me no more flying!

I feel like I'm in an awful bad dream and I've just not woken up.

Lost a few friends in last 6 months and they didn't understand what I was going through why I couldn't do simple things like work into town, but that I managed to walk down the aisle 2 days after coming out of hospital after cyst and tube removal!

Sorry ladies needed to get that off my chest. Xx

[astrogirl7]

Hi Jembee,

You poor thing, what you've been through sounds awful. I have also experienced others not understanding my pain and fatigue but I try not to let it get to me and I have not had a diagnosis yet, due for Lap in Oct.

As for work although you must feel very sad at not being able to fly, your health is important and hopefully you will be able to go back to it. Us humans are brilliant at adapting to change though and you never know, you may pick up some of your other talents in a completely new role.

Your health issues do not seem resolved, from what you say, are you due another op or follow up?

I do hope they finally get rid of all your Endo for you.

You seem like a very strong determined person and very resilient despite your pain but that does not mean you don't need support. There are some very understanding, knowledgeable and kind ladies on here, talk to them when ever you need to, I found it helped me.

Wishing you all the best in health, work and life x

[Jembee]

I have been put back to my gp to go on pill and that's it. They don't want to operate as I want children! Id rather have it removed, I know it will grow back but she said it was a mess in there. Xx