Hi, has anybody had any experience of usi... - Endometriosis UK

Endometriosis UK

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Hi, has anybody had any experience of using aromatase inhibitors? Natural or as prescribed drugs.

esbjorn profile image
3 Replies

I have myself tried mushrooms (normal button mushrooms 1-2kg/week) - certainly had an effect both against the pain, nausea and inflammation but appeared to cause havoc with my hormone levels - too variable in the end. In June this year I started drinking green tea daily combined with nettle tea (antihistamin) and slowly started to feel better. Thought it might have been a coincidence (better weather and plenty of sunshine will also have an antiinflammatory effect) but stopped the tea completely for almost 3weeks as we were away on holiday (hurrah - I was well enough to fly and go off on holiday!!!). By end of week 2 started to feel worse again (nothing unusual feeling ill with endo.. - as most people I have been disappointed so many times over the last couple of years - feeling better and then worse again). So back home I eventually started back on daily green teas end of week 3. After one week of drinking tea three times a day, symptoms abated and now after another 3 weeks I'm 'on top of the world' - I can cut pain medication by half - some days 3/4!! and have soo much more energy. It may only be temporary but it would be interesting to hear of other peoples' experience - both if you have been prescribed aromatase inhibitors or if you have found something else (natural?) that appears to work over a longer period.

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esbjorn
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wp22 profile image
wp22

Yes me. Letrozole. I am currently on my 4th month of them alongside norethisterone and feel fantastic the majority of the time but I have had 3 migraines and 2 bowel cramps in the 4 months. It did take around 3 weeks for them to start taking affect? I do feel great most of the time but as you know don't want to speak too soon. I have to take norethisterone to stop my ovary,s producing eggs. I am coming off them at the end of this cycle as am having lap a month later and I have read that you should stop taking norethisterone around a month before an operation as it affects bleeding. So have to stop the aramatase inhibitor too. But I will take them again right after op. I take lots of supplements to counteract side effects like vit D, B and calcium, some other things but only supplements, nothing heavy and the only side effects I have had are the odd bone ache and I do suffer from these hot sweats, but it does make a nice change as I am usually always cold, lol. Up to now I would definitely recommend them as it helps shrink endo and keeps the pain away which is fab for all of us. I want to stay on them forever, it is my wonder drug! X

Judit999 profile image
Judit999 in reply to wp22

Hi Wp22,

I wonder if you would mind me asking if letrozole and norethisteron continued to help you? What is your long term opinion about the treatment? I'm thinking of trying this treatment, and would very much appreciate your help!!!

Best heath for u X

esbjorn profile image
esbjorn

Hi wp22, thank you for your reply! ;-) Hope you're having a good day. Would you know if prescribing Letrozole (and norethisterone) is the normal procedure or a trial/expreminent at your gynea centre (your consultant)? The reason I'm asking is that I have only found very little references to it in conjunction with endometriosis - it doesn't appear to be part of the standard approach? It would be interesting to learn a bit more and it's really good to hear that it appears to work so well (fingers crossed xxxxxx). All the best for your lap xx ke

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