Has anyone got any tips on how to deal wi... - Endometriosis UK

Endometriosis UK

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Has anyone got any tips on how to deal with sever endometriosis pain, it is agony I am also thinking of going on zoladex is it worth it

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Bobbluesky profile image
Bobbluesky

Hi Sammy, this is my second run of Zoladex, I was on it last Nov for 6mths & after the 2nd injection there was a big difference. I came off it in April & sorry for my words (the shit hit the fan) back to killer pain in hip lower back, side & Heavy Staining I saw my Gynae Doc & she put me on Danazol tablets, but they were crap my arms started to swell so I was taken off them, Back to square 1 the Doc & I talked it over & decided that she would put the Mirena Coil in, when she had me under general She also drained my Cyst @ the same time, I started back on the injections for a 2nd time in June. I got the coil put in on july she said by the time the injections are finished the coil will be well working by then. I would recommend you to try the Zoladex, the only But is I noticed that 2nd time round wasn't as good for me. I wish you well & hope to hear what you decide. Look after yourself, & Take-care. I hope what ever you do works. Xx

sammyrobinson_x profile image
sammyrobinson_x in reply to Bobbluesky

Heyy hun, am just crippled with pain at the moment because of my period :( I want to have children in the future that's what am worried about if I go on zoladex can you still have children when you come off it? My oramorph hasn't worked at all and neither has my naproxon :(

Bobbluesky profile image
Bobbluesky in reply to sammyrobinson_x

Yes you can still have children after coming off Zoladex. I'm 37 & have no children, & this is why my Doc put the coil in as this will give me 5yrs to see if I would like children as she said all that she would have to do would be remove it. But I have a lot of other health problems ( under active thyroid, coelic & fibromyalgia) so along with the Endo I feel like the odds are not good as all the health probs can make it hard to conceive. Talk it over with your Doc & tell Him or Her that you would some day like children to see what options they offer you. Keep your chin up, there's always a way. Hope your not like me & Can't sleep, i'm on sleeping tabs & they don't work.... Try not to let it get you down as I have been very depressed & am on antidepressants as well as all my other medications. The pain can really get you down, not being able to sleep because of it the mood swings & pain all the time. Some days I hate being a woman......:( Hope this Helps & know your not alone..... Xxx

sammyrobinson_x profile image
sammyrobinson_x in reply to Bobbluesky

Am on antidepressants too, I have an appointment with my gynaecology consultant on the 21st of August so ill discus with her what will be the best option, I can't sleep atm because of the pain, hoping i just drop off to sleep, the pain gets me down as am fed up being in pain 24/7 its not nice then when you go to hospital with the pain they label you! That's what I will be worried about with the zoladex the mood swings and hot flushes

Bobbluesky profile image
Bobbluesky in reply to sammyrobinson_x

I have to tell you the Hot Flushes are a pain in the neck so are the mood swings. I will have to get back to you on how I am getting on with the coil in, but if the last few days are to go by it's not great, I have cramp blood staining which I didn't have when I was just on Zoladex, but then again everyone is different. Hope to hear from you after the 21st of August and you can get good advice from your Doc. X

sammyrobinson_x profile image
sammyrobinson_x in reply to Bobbluesky

Ive been told about the coil but am not sure on it, I duno weather I would cope with the hot flushes or the mood swings

Bobbluesky profile image
Bobbluesky in reply to sammyrobinson_x

I get the Hot Flushes because of the Zoladex, I don't know what side affects comes with the coil just yet. The only good way to look @ it is it's coming into Autumn/winter now so may-be the Hot flushes would be a good thing?? GoodLuck any way. But as I said before the 1st time on the injections I really noticed a difference, so I would give it a go..

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