Cysts and mirena coil involving diverticular

I have been admitted to hospital twice in the last 8 weeks. With abdo pain which was diagnosed as Exerbation of Diverticular desease. Then after many tests scans ct scan they discovered a 3.5cm ovarian cyst on right ovary which has since burst.

I am in alot of painj in that whole area and it has been diagnose that a part of my bowel is possibly protruding and stuck immobile and possibly stuck to my appendix which is causing the pain and obviously when the cyst burst it really hurt.

I am unable to go back to work feel lonely scared and very unhappy of things to come mu GP has been helpful and we are working together to get me refered to a colarectal surgeon who works with my gynacoligist specializing i n endo/ I am totally convinced that the endo is playing a hidden part as i have pain all over and opening my bowels in the morning is very painful.

Anyone out there got any advice i'm pretty desperate and would like any kind advice please.

3 Replies

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  • The benefits of having mirena are that it stops your periods and by doing so hopefully stops retrograde menstrual blood going up the fallopian tubes and causing more endo lesions. However it does also increase the chances of having ovarian cysts too.

    I am on my 2nd cyst, 1st one burst since mirena and I only have 1 ovary left now.

    The other was entangled in a cysts that exploded and refilled up again etc.

    So even with just one ovary left, the cyst activity continues. Even with a burst cyst, you do need follow up scans to check if it has refilled up again. Chase up your GP to have another scan in a couple of months time to check on it, if you haven't been recalled any sooner.

    As for the adhesions from endo sticking organs together it is very common and I am glad that you are being referred to a colorectal surgeon to get that looked at. Hopefully they will be able to tackle to adhesions successfully for you which should give you some relief but adhesions do have a tendancy to grow back and each surgery does encourage more of them, so it may not be a forever solution.

    Meanwhile you do need to cope with everything till you get your op.

    Have suitable strength pain relief is essential, and get muscle relaxant pain killers too.

    It is probably well worth your while keeping to a diet of foods that keep your poo soft and flowing easily, and also taking some kinds of laxatives, as the pain killers inevitably do bung you up which makes the whole process of going to the loo even more painful. Hopefully you won't have to wait too long for surgery to get this looked at and treated.

    Being in constant pain is so draining on your energy reserves and exhausting too. And the wait for appointments and surgery while you are in pain can really be ver tough to cope with. Lots of us have been there and we know how hard it is and what you must be going through. topsy turvy thoughts and worries and battling the pain at the same time.

    You aren't alone by any means and if you need to rant or cry or let off steam, come to the forum. If you have a grandparent, parent, partner or other relative to speak with and help you out don't be afraid to ask for help and support.

    Having a supportive GP on your side if half the battle, so make use of them to get the drugs you need to make life more comfy while you wait for the op.

    Best of Luck for getting this sorted out asap.

  • Thank you for all the information thankfully I never get constipated. But I react badly to most painkiller (mainly with diarreah even when taking a Paracetamol) Buscapan has been great help and I'm on a boring soft diet which when you live with Bowel problems you have to watch everything you eat.

    It is great being able to speak to to someone that understands

    Thanks for you kind rely

    Persil xx

  • Thank you for all the information thankfully I never get constipated. But I react badly to most painkiller (mainly with diarreah even when taking a Paracetamol) Buscapan has been great help and I'm on a boring soft diet which when you live with Bowel problems you have to watch everything you eat.

    It is great being able to speak to to someone that understands

    Thanks for you kind rely

    Persil xx

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