Cording in armpit; Ouch!: Hi everyone... - Ehlers-Danlos Sup...

Ehlers-Danlos Support UK
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Cording in armpit; Ouch!

balletlover
balletlover

Hi everyone!

I'm new here (though a sometime lurker!), and I was wondering if you might be able to help me with something.

Over the last week I've developed cording in my left armpit:

bjgp.org/content/bjgp/69/68...

As explained in the link, this usually develops following lymph node surgery, which I have not had (nor any other surgery, trauma, or lymph node infection etc, that I'm aware of).

Have any of you experienced this? How long did it last? Did anything help?

Also, do any of you know if this is associated with hypermobility/EDS, or any other condition, for that matter? I'm struggling to get a diagnosis, partly because my Beighton score isn't high enough.

Thanks so much for your help with this! :)

Ailsa

4 Replies
oldestnewest

To my knowledge (including Google Scholar searches) axillary web syndrome which it is also know as is not associated with EDS.

Because you have not had surgery which is the usual cause, I searched for idiopathic axillary web syndrome and found one paper in Spanish, which if you load up into Chrome will be translated for you: sciencedirect.com/science/a...

It is a case report of a women who was 67 and hadn't had surgery. They suggest that in the few cases that are not because of surgery, it may be caused by infectious process or intense physical effort. Her case resolved after four months with exercises done at home (instructed by someone, probably physio).

If you are struggling to get a diagnoses (and many of us do) can I suggest that you don't try to suggest that this is another sign of EDS because if you do they may use it to dismiss you.

Do you know about the RCGP EDS toolkit? rcgp.org.uk/clinical-and-re...

GPs can diagnose EDS using this toolkit, so if you haven't already you might want to bring it to the attention of your GP.

Good luck! i hope you can find the right exercises to clear this as it must be really uncomfortable.

Thank you so much for this, it's really helpful! :)

Any changes to your skin with no direct cause such as surgery can be indicative of other problems. Definitely go and show your doctor. It isn't reported as an EDS thing at all.

balletlover
balletlover
in reply to Jay66

Thank you! :)

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