Low dose naltrexone for pain - Ehlers-Danlos Sup...

Ehlers-Danlos Support UK

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Low dose naltrexone for pain

Steenygirl1 profile image
4 Replies

Can I ask, anyone using LDN for pain, how do you get on with it and how did you get it? I can't take codeine or nsaids and paracetamol doesn't cut it. Haven't tried CBD oil yet. I have a very low BP and POTS/dysautomonia so my digestive system gives me lots of problems. I am OK if I can pace but sometimes that just is not possible and I am living less than half a life that way anyway. 😭I am hEDS, I don't dislocate but do subluxate. I am 55 just diagnosed, have osteopenia L3&4 and reduced bone density elsewhere. I am due to see physio at St John and St Elizabeth's hospital but I am in so much pain. The magnesium oil isn't helping and at the moment rest is not an option until next week. I am just so limited in how I can manage to live

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Steenygirl1
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Jay66 profile image
Jay66

I have heard of its use for other things, but not for pain control. It is something of a new treatment for pain, I think. I would be very interested in how efficient it is, and if anybody else is on it too.

Steenygirl1 profile image
Steenygirl1 in reply to Jay66

It is used for fibromyalgia for quite some time

Jay66 profile image
Jay66 in reply to Steenygirl1

Ah - my ignorance! I didn't get diagnosed with fibro so haven't joined the boards for it or followed treatments. I can't take NSAIDS either, so would be very interested in something which is anti inflammatory, especially as I also have high blood pressure and diabetes.

Robin1974 profile image
Robin1974

If you have Sjogrens avoid LDN it has no use in the Sjogrens community.

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