I am new here, was told i have hyper mobility syndrome a few months ago. Its taken years to get a real diagnois of anything. First they thought i had just bruised my back, then i might have arthritis of the spine, then i just had a pulled muscle then maybe a slipped disc. I have had lots of blood tests and an mri scan which all came back clear.
The problem is my back. When it flares up i cant walk, i cant even sit on the toilet myself. I feel i am being crushed and its agony It feels like pressure on my lower back and my bum cheeks and i get like a stabbing pain that goes down my bum cheek and right leg. My doctor mentioned sciatica but the hospital said no. They were all clueless until one doctor asked me if i could put both hands on the floor and i did it then she asked me to do a few more things then said bingo you are hyper mobile and have hyper mobility syndrome. The thing is they wont give me anything for the pain and when i ask all i get is oh so its painful just take painkillers which don't work at all. I get physio once every few months and its just a case of lying on the bed lifting my legs then standing on one leg at a time. I will admit most of the time i don't do any of the exercises at home because i am in pain. I just keep getting told its just my muscles being over worked and the exercises will help.
Does anyone else have this same type of back pain? I feel like i am losing my mind and cant take this pain much longer.