Hi I've been diagnosed with being on the hypermobility joint spectrum, apparently all types of hypermobility come under this name now according to my UK geneticist. I was being assessed for EDS.
I had a patella realignment when I was 7 so I knew back then what it was like to have easy dislocations etc. I'm 39 now and I feel this is the first time my condition has been acknowledged. I scored 4/9 on the Beighton score and now being sent for heart scan and neck scan. I have angina and had thyroid surgey years ago too so my blood vessels in the neck are also being scanned. Has anyone had this done?
Also if I'm found to have a cardio/ blood vessel problem does this mean a different score on the Beighton scale and a higher probability of EDS?
Any advice would be appreciated