I have had my first rheumatology appointment this morning and I'm left feeling quite confused. I've been told that I'm definetly hyper mobile (already knew that) but that he can't diagnose EDS as I don't have family history of it. There is apparently no point in sending me to a geneticist as there isn't a test for it so he's going to leave it at just hypermobility. I've been referred for a heart scan to see if I have vascular EDS, but if that's clear then I'm being discharged. Is that normal to only have one appointment and be discharged? I don't know what I should be asking for really! I've been referred for physio as well which is good, but feels like the only positive of my appointment!
Thank you in advance