Hi, I was refered and recently now been diagnosed with hypermobility spectrum disorder bordering EDS (2017 EDS criteria) and chronic widespread pain-musculoskeletal predominant.
That was on the 14th of July.. does this mean I have EDS? I am in so much pain..even more so, in my shoulders..one is so much worse than the other. My neck feels so loose an painful.. my wrists are the same.. my hips elbows ankles and I knees are feeling the same. I have been referred to 3 week stay in hospital for rehabilitation programme. Also my back.. I keep getting aches and painful twitches? Does anyone relate? I just don't understand my letter an also I'm getting worse. X