I was diagnosed with me about 6mth ago,after becoming my doctors new best friend i got to see her so much i know when her baby was due and about her husband and life.
I have had Brain scans,mr scan blood test, been past from one specialist to another.
To be honest i was so relieved to get a Diagnoses i didn't really think about what it meant for me and my family.
In the last year I have had two grand children added to my family and they are my first, it was easy for me when they were born and tiny but now they are toddlers and into everything, they are so much fun I love being with them.
I want to help out and mind them so my kids can get a break every now and then because they are both pregnant again and i know how much hard work it is with a toddler,
but i push myself and have the baby's for a few hours and i pay for it, i usually end up in bed for the next two days and really tired for a week
Is this my life now.
I feel useless i am only 52 and I have always been the one looking after other people, I was a palliative care worker and studied hard later in life to get all i need to help people that needed me.
now i don't remember half or most of what i learned, i had to give up a job i loved, i get panicked when i go out,
I cnt sleep and i am tired beyond belief all the time.
Sorry I am going on I know but is it just me or we we all feel useless now.