Hi
If you haven't already seen this petition please consider signing it and sharing amongst as many sympathetic people as you can. It is a petition to persuade the government to properly fund research into M.E./CFS and educate health professionals to better understand the condition.
I'm sure I don't need to persuade anyone on this forum of the reasons why this is so vital.
change.org/p/david-cameron-...
Thank you.
Margaret
Hi Margaret
Clicked on the link but change.org says the page doesn't exist.
Tbh not sure a petition like this would have much effect. There were absolutely hundreds of petitions on this site for all sorts of things. I don't think MPs would have the time to consider any of it. I think Action for ME's cross party government commitee gets to the issue more effectively.
Best wishes
Hi ME 65
Yes I've just tried the link above myself and it only registers the first part of the address so it's not going to work is it, oops!! I've repasted the whole link in below which hopefully will work this time for anyone who is interested.
change.org/p/david-cameron-...
The page is still there and the petition is still open. I know it is because I'm still getting loads of messages saying people have signed it. I posted it on the websites for Action for ME, ME Association, and ME Support too. All three of them have themselves "liked" the post and ME Support reposted it on their main page. I guess that is why I have had over 160 messages so far saying people have signed directly from the links I posted. And from what I can tell I'm pretty sure there are quite a few more signatures from where people have shared the link with family and friends. If Action for ME approve of it themselves it's got to be worth a try surely!
I'm sorry you don't feel it will do any good in terms of getting the government to listen (and in that you may well be right), but I can't agree that that means it's not worth trying. After all you know as well as I do that this condition is all but ignored and completely misunderstood so I personally feel anything we can do to raise awareness has got to be for the good, even if the petition itself does not achieve the stated aim at least it gets the word spread a little bit more. You must have noticed by now, if we don't shout about it, no one else is going to do it for us.
Yes I agree Action for ME do and other similar groups all do good work, but it's not working yet is it. Surely the more we spread the message the greater the awareness, every little helps and all that. I just think we owe it to ourselves to do everything we can ourselves to help ourselves, otherwise why should any one else bother on our behalf if we don't even do what little we can (it's just tapping a few keys).
Obviously no-one is obliged to sign, but I just don't like moaning about the lack of support and then ignoring an opportunity to at least tell that to the government and maybe, you never know, try and get them to do something about it.
Take care
Just to say I've just tried the link in this message and it did work so fingers crossed!
Hi Margaret
Retried the the latest link and got through. Watched video and signed petition!!
You are right. Just some days I am too crashed to fight the fight.
Take care x
Of course I completely understand, after all I feel that way myself many days, we all do don't we?
Sorry if I sounded a bit bossy but, it's just because like everyone else who is under the cosh of this flipping torture I desperately want people to listen. So when I feel a little more up to it I bang my drum where ever I can (even if it is barely audible!).
Of course it is absolutely not my intention to put pressure on anyone, particularly if they are not up to the fight (which is most days for us isn't it). You are right, I doubt very much this government will listen as they are a large part of the problem to start with. But my determination at the moment comes from the heart mixed with large amounts of frustration and desperation!
Thanks for your understanding and not biting my head off for getting on my soap box!
Look after yourself
Margaret