EDMESH
1,687 members309 posts

Fast heart beat me

I was diagnosed with me in November and have noticed my rate is very high even At rest Does anyone else find this who suffers with me/cfs any advice thanks :)

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Look in to POTS. It is often associated with ME. See potsuk.org/

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Yes I found out shortly after I was diagnosed with fibromyalgia and CFS/ME that my heart rate was high. Walking around in the house it would go up to the 130’s resting was 80’s -90’s but as time went on it slowly came down to 90’s -100’s when walking and resting 70’s-80’s. Now laying down is in the 60’s. I was diagnosed back in 94. My heart rate returned to normal over last 23yrs.

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That sounds better thank you I have been worrying about cause it is really high when I am doing nothing but hopefully will settle down :)

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Sumdum I would still mention it to your doctor on your next visit but if you are on amitriptyline and your doctor tells you to stop taking it until your heart rate goes down. Be prepared to get very little sleep if that. I am speaking from experience I only got 45minutes of sleep that night. I was still working then so was able to do a lot of charting and care plans that night. Amitriptyline is one of those medications that you have to wean off of not stop cold turkey. So needless to say the following night I took one and slept that night so I just delt with the tachycardia. How fast is your heart rate running at during rest and activity?

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Reast it’s about 80 to 90 and activity it’s at 120 to 130 x

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Are you on amitriptyline? That was about what mine use to be. I just check my heart rate while resting here it was 66. When I first got sick just walking from the couch in the living room though the master bedroom to the bathroom 🚽and back in a single wide model home the distance wasn’t that far to make my heart rate to jump up into the 130’s.🤷🏼‍♀️ Well it is late so I need to go to bed. Goodnight 😴💤I’m sleepy so going to bed. 💤 hugs 🤗💕🦋

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Thank you and yer I have been on a very lose dose for my pain a hope you had a nice sleep :)

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You are welcome sumdum. Sorry I haven’t been around the last few days. Yes I slept 🛏 well for the most part. I hope you have a good weekend. 🤗💕🦋

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Thank you and you too x ☺️🌻

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Hi Sumdum,

Do you also feel hungry a lot? To me it really sounds like Hypoglycemia (low blood sugar). Try measuring your blood glucose level.

Chronicle Hypoglycemia won't go away after eating a candy. It usually take a diet and a couple of months for your body to regenerate.

I hope you beat this condition at some point!

never give up.

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Thank you it’s hard but all keep going ;)

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I have this too. They're doing an echocardiogram on me next week. Though I am fairly sure it's just a side effect of ME-CFS, I want them to keep an eye on my heart because apparently it's common with "half-filling" and there's a hormone which regulates heart muscle contractions that people with ME-CFS are not producing enough of. There are many studies online, here is one: meresearch.org.uk/our-resea...

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Thank you x

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